• Families Flock to Capitol for Health Summit

    Families from around California gathered in Sacramento February 27-28 for the 15th annual Family Voices of California Health Summit and Legislative Day. Presenters at the Summit included elected officials, community and agency leaders, as well as parent advocates. On Legislative Day, families and their children fanned out through the Capitol to visit legislators' offices and make the case for needed changes in the health care system.

  • New Grants Target Care Coordination for Children with Special Health Care Needs

    Improving care coordination for children with special health care needs and their families is the goal of two grants awarded March 1 by the Lucile Packard Foundation for Children's Health. Researchers from Children's Hospital Buffalo will design a family-centered system of care coordination for children with medical complexity, and Health Management Associates will examine states that have made progress toward inter-agency collaboration.

  • Medicaid: A Lifeline for Families of Children with Special Health Care Needs

    Public health insurance programs like Medicaid cover nearly half of children with special health care needs (CSHCN) nationally. The Kaiser Family Foundation recently released an article outlining the important role Medicaid plays in the lives of these children and their families. Learn more and see specific data on California’s one million CSHCN, along with national comparisons.

  • Young Investigators Tackle System Change for Children with Special Health Care Needs

    Eleven young researchers have completed projects and published journal articles on ways to improve the health care system for children with special needs. Their work covers a range of issues, including children’s transition from the hospital care to primary care; education of pediatric residents; transition of care from adolescence to adulthood; and use of group visits to increase efficiency.

  • American Heart Month: Meet Isabella

    February is American Heart Month. Isabella, a 4-year-old with Down syndrome and developmental delays, had open-heart surgery to correct a heart defect when she was 6 months old.

  • New Tool Helps Measure How Families Experience Integration of Care

    Grantee:

    Richard Antonelli, MD, MS, Boston Children’s Hospital

    Researchers at Boston Children's Hospital, Harvard Medical School, and Harvard T.H. Chan School of Public Health have created the Pediatric Integrated Care Survey (PICS), a validated tool for measuring a family's experience with the integration of health care and related services for children and youth with special health care needs. Read more and get access to the tool.

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