Improving health care for children with complex chronic conditions is the focus of two grants awarded November 1 by the Lucile Packard Foundation for Children's Health. A third grant will support development of tools to measure the impact of family engagement in policymaking for children with special health care needs.
Diane Stonecipher’s son, now 24, is blind, quadriplegic, profoundly delayed, and has been in hospice twice. Yet he doesn’t qualify for nursing care at home. Stonecipher, herself a nurse, says it’s time to train a new kind of workforce for in-home and residential care.
What does it take to create and implement an effective, family-centered plan of care for a child with special health care needs? Our expert speakers will discuss their approaches to the process of care planning in two very different settings—Children's Hospital of Philadelphia and a small private practice in Vermont. Join us!
On September 21, ABC will premiere its new sitcom, Speechless, about a family with a child who has special needs. The show stars Micah Fowler, a young actor who in real life and in the show has cerebral palsy, and Minnie Driver, who plays the mother of Fowler’s character, JJ. We talked to Melvin Mar, one of the show’s executive producers, to get a behind-the-scenes look at Speechless.