Ten years ago, My Flesh and Blood, a documentary about Fairfield, California-based Susan Tom and her 11 children with special needs, was broadcast. Since then, her home has undergone an Extreme Makeover, and her children are now adults. Read an interview with Susan discussing the transition of her kids to adult health care and making legal and financial preparations for their continued well-being.
The lives of children with chronic or complex medical conditions often are complicated by psychosocial issues and family problems such as poverty, poor parental health, substance abuse, domestic violence, and homelessness. This July 27 webinar will highlight advances in research and practice that aim to improve the well-being and health outcomes of these children with "social complexity.” Join us!
Panelists answer questions from an April 13 webinar that featured a parent's perspective on care coordination, along with real-life examples from a provider and a payer on how to develop effective local care coordination systems for children with special health care needs.
Readers have responded positively to a 2016 survey about the content, format, and frequency of the Newsletter of the California Advocacy Network for Children with Special Health Care Needs. More than 160 subscribers offered their thoughts on the Newsletter, which provides state and national policy news, resources, and event information specifically for people interested in improving the well-being of children with special health care needs and their families.