Data regarding California children with special health care needs and their families can help shape policy decisions and inform program planning. The Foundation operates kidsdata.org, which offers data about these topics to use in your work. Please visit the links below. The kidsdata team also is available to answer your data questions.

 

  • Characteristics of Children with Special Needs

    More than 1 million California children and youth have a need for health care services of a type or amount beyond that required by children generally. See data about prevalence of special health care needs among children; special education enrollment; adverse experiences and resilience among children with special health care needs; and more.
  • Access to Services for Children with Special Health Care Needs

    Data are available about children with special health care needs who have unmet medical care needs and difficulty accessing community-based services. Also see indicators about preventive visits, receipt of mental health services, unmet dental needs, support for transition to adulthood, and more.
  • Insurance Coverage for Children with Special Health Care Needs

    Data cover consistency and adequacy of health insurance coverage for children with special health care needs, who may face challenges in obtaining timely access to pediatric subspecialty care and comprehensive, coordinated, high quality health care.
  • Impact of Special Health Care Needs on Children & Families

    Due to higher caregiving burdens, families of children with special health care needs tend to experience more stress and difficulties with employment and finances than other families. Data show disparities by complexity of health needs, poverty level, insurance type, and race/ethnicity.
  • Quality of Care for Children with Special Health Care Needs

    Though advances in medical care have extended and improved the lives of millions of children, obtaining timely, appropriate, and affordable care remains a problem for many families. See data about receipt of effective care coordination, family-centered care, and medical home for children with special health care needs.

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