• Habilitative Services Coverage for Children Under the Essential Health Benefit Provisions of the Affordable Care Act

    Sara Rosenbaum, the Harold and Jane Hirsh Professor of Health Law and Policy at the George Washington University School of Public Health and Health Services, analyzes how habilitative services may be covered under the Essential Health Benefits Provisions of the Affordable Care Act.  The author notes that states will play a primary role in determining Essential Health Benefits, and that establishing state standards for health insurance plans sold in the individual and small group markets will be key to health policy for children with disabilities.

  • Assuring Children’s Access to Pediatric Subspecialty Care in California

    This policy note, prepared by the UCLA Center for Health Policy Research and funded by the Lucile Packard Foundation for Children’s Health, explores disparities in access to pediatric subspecialty care in California by insurance coverage, geographic location, race/ethnicity, and language. The paper proposes recommendations to ensure adequate access to pediatric subspecialty care.

  • Children with Special Health Care Needs in California: A Profile of Key Issues

    Compared to children in other states, California’s children with special health care needs receive care that is less coordinated, less family-centered, and fails to meet many of the key quality indicators prescribed by the Federal Maternal and Child Health Bureau, according to this new analysis of the  2009/10 National Survey of Children with Special Health Care Needs.

  • An Enhanced Model of Health Care for Children with Special Health Care Needs in California

    Thanks to medical advances, growing numbers of children now live with complex, chronic health conditions. However, our health care system has not evolved to keep pace with this historic shift. The Lucile Packard Foundation for Children’s Health convened experts to develop an enhanced model for how care could be delivered to children with special health care needs in California.

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