Engaging with families is vital to transforming the health care system and positively impacting the life course of vulnerable populations. Families have extensive experience in partnering with professionals to improve systems of care, are organized and connected across the country, and stand ready to assist at every level of next efforts for improvement. Learn how to meaningfully involve families at every level of health care systems and engage them as critical partners in designing policies that will improve care for all children.
Increased attention to children with medical complexity has occurred because these children are growing in number, consume a disproportionate share of health-system costs, and require policy and programmatic interventions that differ in many ways from the broader group of children with special health care needs. But will this focus on complex care lead to meaningful changes in systems of care and outcomes for children with serious chronic diseases?
As health care and financing systems become more sophisticated, health care systems are increasingly using a process known as "risk tiering" to group patients with similar degrees of need for health care and care coordination services. Payers are becoming part of this conversation, which for children is in its very early stages. Families and care providers of children with chronic and complex conditions should understand the risk tiering process, as it may affect access to services these children need. This February 28 conversation describes current tiering practices and uses, and makes recommendations for policy and research, particularly as the process relates to children with special health care needs.
This February 28 webinar introduces a new report from a group of national experts that describes current tiering practices and uses, and makes recommendations for policy and research, particularly as the process relates to children with special health care needs.
The family perception of care integration is essential in identifying opportunities to improve processes of care coordination and care management. This June 15 webinar introduced a tool developed at Boston Children’s Hospital to measure how families experience integration of care for their children with special health care needs.
Panelists answer questions from a June 15 webinar that introduced the Pediatric Integrated Care Survey, a validated instrument from Boston Children’s Hospital that assesses family experience of care integration.