Designing Systems That Work
for Children with Complex Health Care Needs

National Academy of Science Building

Children with complex health care needs are a sentinel population for shortcomings in the organization and financing of children’s health care in the U.S. This invitational symposium identified and discussed issues within the general child health care system that have particular salience for the care of children with complex health problems. It provided a forum to learn from those making progress on these issues as well as those working in adult health care and health policy. Participants engaged in dialogue to identify solutions to the issues, make recommendations for adoptions of those solutions in practice, programs, and policy.

See the symposium proceedings, which provide a summary of each session, and visit the Webcast Archive to find recordings of each session, along with presentation slides.


Monday, December 7, from 11:30 a.m.
Tuesday, December 8, from 8:30 a.m. to 4:30 p.m.


National Academy of Sciences Building
2101 Constitution Avenue NW, Room 120
Washington, D.C. 20418

Speakers: see the list of speakers.


  • National health care policy and children with health complexity
  • Risk assessment and tiered care
  • Care planning and coordination
  • Supporting self-management
  • Models of co-management and team care
  • Cost, financing and payment for complex care

See the detailed agenda and slides from the presentations.

Travel Policy: Each attendee will be reimbursed for travel expenses up to a capped amount and in accordance with the Foundation's policies. Lodging will be provided in addition to travel reimbursement, the arrangements for which will be made by the Foundation.

See the detailed Guide to Travel Reimbursement.

The meeting was sponsored by the Lucile Packard Foundation for Children’s Health, whose goal is to improve systems of care for children with special health care needs, in partnership with the National Academies of Sciences, Engineering, and Medicine’s Forum on Promoting Children’s Cognitive, Affective, and Behavioral Health.

For questions about the event, please contact Olivia Kirkland at Olivia.Kirkland [at] or (650) 498-7820.