FOCUS AREA

Family Engagement

We promote the meaningful inclusion of families as full partners in the planning and implementation of health care policies, programs, and individual service plans.

Why It's Important

Families of children with special health care needs have the lived experience of navigating the complex and fragmented health care system and are the experts in the care of their children. Incorporating the family perspective at all levels of the health care system can help ensure a system that is more responsive to and appropriate for families.

Our Approach

We promote the meaningful inclusion of families as full partners in the planning and implementation of health care policies, programs, and individual service plans. We believe engaging families as full partners requires the intentional practice of working with them at the individual, community, and policy levels. Our priorities include:

  • Increasing the number of trained family advocates
  • Developing opportunities for family members to participate in policymaking
  • Sharing best practices for family engagement at the system level
  • Building evidence on the impact of meaningful family engagement¬†

Recently Awarded Grants