Network News
Welcome to the first newsletter of the California Advocacy Network for Children with Special Health Care Needs. Our new bimonthly publication will highlight news, resources, reports, and events related to children with special health care needs in California. We hope that you will forward the newsletter to your colleagues and encourage them to join the network.

New Report: California's System of Care for CSHCN Lags Behind Many States
Compared to children in other states, California’s children with special health care needs receive care that is less coordinated, less family-centered, and fails to meet many of the key quality indicators prescribed by the Federal Maternal and Child Health Bureau, according to a new analysis of the 2009/10 National Survey of Children with Special Health Care Needs. The study was conducted by Christina Bethell of Oregon Health and Science University, and commissioned by the Lucile Packard Foundation for Children’s Health. See the full results and a two-minute video.

Applications Due Soon for Grants for Care Coordination
In our Network survey, members listed care coordination as one of their top priorities. In response, the Lucile Packard Foundation for Children’s Health has issued a Request for Proposals for grants to support local and regional-level care coordination efforts. The RFP and a recent webinar explain the details and requirements for submitting a proposal. The deadline for submission is February 8, 2013.

California Health Policy
Issue Brief: Healthy Families Transition to Medi-Cal
As California’s state health officials start transferring 860,000 children from Healthy Families to Medi-Cal, a new issue brief highlights some of the promises and pitfalls that lie ahead for families of children with special health care needs, and offers recommendations for a smoother transition. For more information on the transition, visit the California Department of Health Care Services’ Healthy Families website.  

National Health Policy
Medicaid-Medicare Provider Reimbursement for Pediatricians and Subspecialists
As part of the implementation of the Affordable Care Act (ACA), Medicaid pediatricians and some subspecialists will be paid the Medicare reimbursement rate, as of January 1, 2013. In California, this amount doubles the current Medi-Cal reimbursement rate and is roughly 80% of private health insurance payments.  The American Academy of Pediatrics and the federal Center for Medicare and Medicaid Services (CMS) can answer questions regarding specific specialties and services covered under this rate increase. This federal program continues until the end of 2014. Additional Congressional action will be needed to extend the program beyond 2014. Information about the increased primary care service payments is also available from the Kaiser Commission on Medicaid and the Uninsured.

In the News — Children with Special Health Care Needs
Transition of Low-Income Kids to Medi-Cal Concerns Advocates
SF Chronicle, January 4, 2013
California’s Children and the Health Care Overhaul
KQED, December 12, 2012

Report: Supplemental Security Income (SSI) for Children with Disabilities
A new report developed by the National Academy of Social Insurance explores the SSI Benefit for children with disabilities. The maximum cash benefit for the program per month per child is currently $698. Families of children with special health care needs are often unable to stretch these dollars far enough to cover expenses.

Publication: The Future of Children: Children with Disabilities
The Spring 2012 edition explores childhood disability - its prevalence, nature, treatment, consequences and costs - across the range of conditions. The authors consider disability within the context of the nation’s educational, health insurance, and medical systems, and examine the impact of emerging technologies on the experience of disability.

Upcoming Events
Jan. 30, Long Beach, Partnership for Patient and Family-Centered Care
Feb. 25-26, Sacramento, Family Voices of California, 10th Annual Health Summit & Legislative Day  

Keep in Touch
Let us know what’s happening with your organization or family. Contact Janis Connallon at 650-498-7820 or