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Network News

New Website: Children with Special Health Care Needs
Network members can find great resources and information on the new Children with Special Health Care Needs website recently launched by the Lucile Packard Foundation for Children's Health. The website features information about the foundation's grantmaking process, reports, issue briefs, and current data on children with special health care needs. Resources for your advocacy work and links to sites for families also are featured, along with previous issues of the Network newsletter.

This site will grow as the foundation expands its work to support children and families, as well as providers, policymakers, and advocates. E-mail Network Manager Janis Connallon at with your suggestions for resources or other information to add to the website.

Grant Funds Available for Care CoordinationApplications are due February 8 for the Lucile Packard Foundation for Children's Health Request for Proposal for grants to support local and regional-level care coordination efforts. The RFP and a recent webinar explain the details and requirements for submitting a proposal.

Last Chance: Take the Care Coordination SurveyAs you may remember, we are surveying Network members to help design effective advocacy strategies to improve care coordination in the state. The survey is quite brief and builds on the suggestions for approaches to care coordination that we have received from families, providers and other advocates in California. If you have already completed the survey, thank you for participating. If you have not previously responded, please take a few minutes and complete this seven-item online survey now.

California Health Policy
California Legislature Convened to Consider Health Care
Governor Brown convened an "extraordinary session" of the state legislature on January 28 to consider legislation for implementing the Affordable Care Act (ACA). This session addressed expanding the Medi-Cal program, and options for providing low cost health insurance coverage for individuals under the California Health Benefit Exchange (Covered California).  

National Health Policy
President Mentions Parents of Children with Special Health Care Needs in Inaugural Address
President Obama specifically mentioned parents raising children with disabilities in his Inaugural Address. "We reject the belief that America must choose between caring for the generation that built this country and investing in the generation that will build its future. For we remember the lessons of our past, when twilight years were spent in poverty and parents of a child with a disability had nowhere to turn." The President acknowledged that there will be "difficult choices" to be made regarding programs including Medicaid.

Senator Hatch Proposes “Per Capita Caps” in Medicaid
On January 24, Senator Orrin Hatch (R-UT), the ranking member of the Finance Committee, released five ideas to change Medicare and Medicaid. One idea suggests limiting the amount of federal dollars spent for each Medicaid beneficiary (per capita caps). Currently, Medicaid is an entitlement program. Each beneficiary receives services based on his or her individual need. Senator Hatch’s proposal does not describe how the cap would be determined. We're tracking these developments and will update you in future newsletters. Weigh in with your thoughts by emailing Network Manager Janis Connallon at

In the News — Children with Special Health Care Needs
California’s Children with Special Health Care Needs Struggle to Obtain Quality Care
(HealthyCal, January 29, 2013)

The Medi-Cal Program at a Crucial Time
(Los Angeles Times, January 19, 2013)

Asian American and Latino Parents in California Less Likely to Seek Traditional Mental Health Care for Kids, Study Finds
(California Healthline, January 23, 2013)

Family Commutes to Specialty Care
(Center for Health Reporting, January 28, 2013)

Are there Enough Medi-Cal Providers?
(Center for Health Reporting, January 28, 2013)

Grant Opportunity
Statewide Family Network Program Grant, U.S. Department of Health and Human Services (HHS)

This grant aims "to strengthen the capacity of families with children who have a serious emotional disturbance to act as agents of transformation in influencing the type and amount of services provided to them and their children and to ensure their mental health care is family driven and youth guided." Estimated funding is $60,000 to $70,000 per year. Applications are due March 7, 2013.

Video and Articles: Gabe’s Care Map
(, January 25, 20013)

This resource on contains several articles and a video for parents and providers.  The video discusses life as a parent of a child with special health care needs. It includes a panel discussion on coordinating care and community services. There is also an article on financial planning for the future for a child with special health care needs.

Upcoming Events
February 25-26, Sacramento, Family Voices of California, the 11th Annual Health Summit and Legislative Day. Families, providers, policymakers, and advocates for children with special health care needs are all invited to participate in a discussion of current health policy issues for children and families.

Keep in Touch
Let us know what’s happening with your organization or family. E-mail Network Manager Janis Connallon at at with your news or updates.