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Network News

New Grants
Two Network member organizations are among the recipients of more than $852,000 in grants recently made by the Lucile Packard Foundation for Children's Health to improve systems of care for chronically ill children in California.

Support for Families of Children with Disabilities, based in San Francisco, will train families of chronically ill children to advocate for health system change. The Lucile Packard Children’s Hospital in Palo Alto will continue its work with a group of medical directors for California Children's Services to coordinate their work and to standardize care and eligibility standards for children served by CCS.

Other grants will: 
* Develop better ways to evaluate how well providers coordinate children's care.
* Explore creation of an online claims clearinghouse for providers who serve children with chronic health problems.

For more detailed information on all of the grantees and their projects, click here.

A New Learning Collaborative
Network members also will play a key role in a new project, the California Community Care Coordination Collaborative (5Cs), also funded by the Foundation. This learning collaborative of six community coalitions will help enhance coordination of care among community service providers.  Participants will identify areas of shared need, discuss emerging challenges in care coordination, receive technical assistance and learn from one another. For more information and a list of the organizations involved, click here.   

California Health Policy
Expanding Health Workers’ Roles  
California State Senator Ed Hernandez (D-West Covina) is planning to introduce legislation to expand the scope of practice of mid-level health care providers, including nurse practitioners and physician assistants. The legislation is designed to improve access to health care services by increasing the number of health workers able to provide care. By allowing some mid-level practitioners to be designated "providers of medical homes," this legislation could expand the availability of medical homes to more California children with special health care needs.  

This legislation has yet to be introduced; we’ll be following its progress through this year’s legislative session. This is an important time to educate policymakers about the unique needs for families of children with special health care needs in California. Read more: Should California Expand Providers' Scope of Practice? California Healthline

In the News — Children with Special Health Care Needs
Opinion: Healthy Families Transition May Harm Children’s Health
SJ Mercury, March 4, 2013

Parents to Congress: Teen Mental Health Care System Deeply Troubled
NBC News, March 4, 2013

Blog Talk Radio: PTSD and Children with Special Health Care Needs
The Coffee Klatch, March 5, 2013

Caring for the Hospitalized Child: A Handbook of Inpatient Pediatrics, American Academy of Pediatrics

Patient & Family Centered Care Conference, Long Beach, Calif., June 3, 2013
The conference offers health care providers, administrators, staff, patients & families a regional opportunity to connect and share challenges, solutions and successes related to patient and family-centered care. Contact Libby Hoy at or Mia Arias at

Keep in Touch
Let us know what's happening with your organization or family. E-mail Network Manager Janis Connallon at at with your news or updates.