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Network News

Legislative Briefing: Save the Date!
April 18, 2013, 10:00 a.m.-Noon
Legislative Briefing: Children with Special Health Care Needs in California
Convened by Dr. Richard Pan, Chair, California Assembly Committee on Health  
Sacramento, California State Capitol, Room 126
More details coming soon…

CCS Medical Directors Collaborating
Establishing statewide consensus on eligibility and care standards for children enrolled in California Children’s Services (CCS) is a key goal of the newly formed CCS Medical Advisory Committee (CCS MAC). Medical consultants for the 30 “independent” counties – those with large populations of children receiving services through CCS – began meeting in November 2012, funded by a grant from the Lucile Packard Foundation for Children’s Health to Network member organizations Lucile Packard Children’s Hospital and the Children’s Regional Integrated Service System (CRISS).

The medical directors will develop a consensus document to address differences in implementation of CCS eligibility policies and procedures across counties, and will develop an orientation manual for CCS medical staff. Eventually, these resources will be available statewide to CCS medical staff to help standardize access and care and better serve children and families. In March, the committee received a second grant from the Foundation to continue its work for two more years.

California Health Policy
Healthy Families Transition to Medi-Cal
If your child is part of the transition from Healthy Families to Medi-Cal coverage and you are experiencing challenges or questions, there are a number of organizations and resources that may help. For more information, click here.

National Health Policy
Senate Budget Committee Endorses Care Coordination for Children with Special Needs on Medicaid
The Senate Budget Committee recently took an encouraging – and bipartisan – first step in recognizing that children with special health care needs served by Medicaid require special attention. The Committee agreed to an amendment by Senator Bill Nelson (D-FL) to encourage Congressional support for care coordination and other steps to improve outcomes and lower costs for medically complex children in Medicaid. This amendment provides federal recognition that children with complex needs require a higher level of care and need to be managed in ways reflecting their age and condition. To ensure that children with complex needs get appropriate care, legislation will be needed to develop the specific requirements.

If you are interested in supporting this Congressional action, please contact our Senators and your Representative and urge them to keep the “Sec 330” amendment in the budget.

Affordable Care Act Implementation for Families of CSHCN: Navigator Grants
Under the ACA, state exchanges are required to provide grants to “navigator” organizations that will help consumers choose a health plan. Each state must have two types of organizations serving as navigators, and one of those types must be a community or consumer-focused nonprofit. Many Family-to-Family Health Information Centers or Family Resource Centers have experience as navigators and should consider applying for a grant. See this blog post from the Georgetown Center for Children and Families for more information.

New Resources
First Focus Fact Sheet:  Medicaid Keeps Children Healthy
National Council on Disabilities Recommends Ways to Implement Medicaid Managed Care Without Harming Americans with Disabilities

What Patient-Centered  Should Mean: Confessions of an Extremist by Donald M. Berwick
Health Affairs, March 2013

March of Dimes: What New Moms Need to Know (Health Care and Special Education Programs)

Ethical and Policy Issues in Genetic Testing and Screening of Children
American Academy of Pediatrics, February 2013

April 3, 12:00 p.m. - 1:00 p.m.
The Affordable Care Act and Exchange – What are the Specifics?
Sponsor: Family Voices of California
Presenter: Lisa Chan-Sawin, Director of Policy & Operations at Harbage Consulting
Reserve your Webinar seat now at:

In the News — Children with Special Health Care Needs
Finding a Partner for Children’s Health in Centralized Care
New York Times, March 14, 2013

The Worst Victims of the Sequester:  Special Needs Students and Poor Kids
The Atlantic, March 18, 2013

Children’s Advocates Slam House Budget
The Hill, March 2013

Encouraging Trends in Children’s Mental Health Services
Reclaiming Futures.Org,  March 26, 2013

Keep in Touch
Let us know what's happening with your organization or family. E-mail Network Manager Janis Connallon at at with your news or updates.