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Network News

Just Released: Report on Access to Pediatric Subspecialty Care in California
More than a third of California parents of children with special health care needs report difficulties getting care from a pediatric subspecialist. A new policy note  from the UCLA Center for Health Policy Research examines access to pediatric subspecialty care in California by insurance coverage, geographic location, race/ethnicity, and language, and offers policy recommendations for ensuring adequate access to care. Network members are welcome to join an April 25 webinar on the report, which was commissioned by the Lucile Packard Foundation for Children’s Health. More information.

Reminder: April 18 Legislative Briefing   
Assemblymember Dr. Richard Pan, chair of the Assembly Health Committee, and the Lucile Packard Foundation for Children's Health invite you to attend a legislative briefing on Children with Special Health Care Needs (CSHCN) in California. This briefing will provide an opportunity for policymakers to learn about the challenges faced by these children and their families, as well as policy solutions and other avenues for change. Click here for more information on the briefing.

California Health Policy
Healthy Families Transition to Medi-Cal
Children’s health advocates are increasingly concerned about how children are faring under a massive transition of 875,000 California kids, many of them children with special health care needs, from Healthy Families subsidized health insurance to Medi-Cal. The cost savings of the transition have been slashed from $13 million to $137,000 in its first year, according to state officials, and families are finding that their access to some services, particularly behavioral therapies for autism, has been cut off. Some advocates are calling for the transition to be stopped until significant administrative and care access problems can be fixed.   

National Health Policy
2014 Federal Budget Proposal
The Association of Maternal and Child Health Programs offers its preliminary analysis of how President Obama’s 2014 federal budget proposal could affect children’s programs. One highlight: the budget includes $15 billion over the next 10 years to extend and expand evidence-based voluntary home visiting programs.

Affordable Care Act Navigators
Family-to-Family advocacy and support organizations like Family Voices are considering becoming certified as paid “navigators” to help people select health insurance purchased through the new Affordable Care Act health exchanges. Get more information here.

New Resources
Creating a Patient and Family Advisory Council: A Toolkit for Pediatric Practices
National Initiative for Children’s Healthcare Quality

Summer Camps for Children with Special Needs, Including Chronic Illnesses
Federation for Children with Special Needs

Special Needs Parent Chat
BlogTalkRadio show for parents of children with special needs

In the News — Children with Special Health Care Needs
Shift to Medi-Cal Leaves Autistic Kids Without Adequate Care
New America Media, April 11, 2013

ADHD Seen in 11% of US Children as Diagnoses Rise
New York Times, April 1, 2013

Keep in Touch
Let us know what's happening with your organization or family. E-mail Network Manager Janis Connallon at at with your news or updates.