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Network News

Member Profile
Kathryn “Kathi” Smith of Children’s Hospital Los Angeles has been caring for children with special health care needs for more than three decades. Learn more about her work here.

Community Care Coordination: A Growing Collaborative
Monterey County, with the leadership of Monterey County Children’s Medical Services, is beginning to develop its own care coordination collaborative that will be part of the California Community Care Coordination Collaborative. At a June 26 kickoff meeting, facilitated by Marc Thibault of the Kern County Medically Vulnerable Care Coordination Project, 24 representatives from a diverse group of public and private agencies agreed to develop a needs assessment and analysis of current resources, and pilot a collaborative case review process.

Transforming Care Coordination: New Issue Brief
Families of children with special health care needs often say they feel overwhelmed trying to manage their child’s care in today’s complex and fragmented system, and would welcome more and better care coordination services. At the same time, they know that ultimately the family has primary responsibility. This paradox calls for a revision in how care coordination services are defined and delivered. A new issue brief outlines what services might look like if they were designed to support families’ role as the primary care coordinator.

Grant Opportunity
Deadline July 31!
Community Access to Child Health (CATCH): Planning, Implementation, and Resident Grants
Grants of up to $12,000 for pediatricians and $3,000 for pediatric residents are available from the CATCH program of the American Academy of Pediatrics for innovative initiatives to ensure that all children, especially underserved children, have medical homes and access to health services not otherwise available in their communities. More information.

California Policy
Special Needs Education Lawsuit
A group of parents of children with special needs sued the California Department of Education in late 2011, saying the agency is violating federal law by not providing adequate accommodations for their children’s education in public schools. A federal district judge then ruled that the case may proceed. The next hearing is scheduled for Aug. 22. If the parents prevail in court, California schools might be required to provide more services to special needs students. We’ll keep you posted on the lawsuit’s progress.

Healthy People 2020 Leading Health Indicator Webinar: Maternal, Infant, and Child Health

July 18, 2013
9 - 9:45 AM PDT

Sponsored by the U.S. Department of Health and Human Services, this webinar will focus on Maternal, Infant, and Child Health, one of the 12 Healthy People 2020 Leading Health Indicator topics. This event will also feature the Ohio Perinatal Quality Collaborative and their success in improving maternal, infant and child health. Register here.

Recession Led To a Decline in Out-Of-Pocket Spending For Children with Special Health Care Needs
Health Affairs, June 2013

The Landscape of Medical Care for Children with Medical Complexity
Children’s Hospital Association research report, June 2013

Medical Home Transformation in Pediatric Primary Care—What Drives Change?
The Annals of Family Medicine, May/June 2013

How to Increase Your Child's Medicaid Private Duty Nursing Hours
Complex Child E-Magazine, June 2013

Apps for Helping Autistic Kids Socially and Academically
San Jose Mercury News, July 5

California's Developmental Disabilities Service System
SCAN Foundation issue brief, June 24

Transitioning Beneficiaries with Complex Care Needs to Medicaid Managed Care: Insights from California
Kaiser Family Foundation issue brief, June 2013

EveryBody: An Artifact History of Disability in America
Smithsonian, June 2013

CSHCN in the News
An Autism Treatment Lost in California's Shift From Healthy Families
Los Angeles Times, July 5

Op-Ed: Schools Must Stop Ostracizing Kids with Special Needs, July 1

Keep in Touch
Let us know what's happening with your organization or family. E-mail Network Manager Janis Connallon at at with your news or updates.