Moving Ahead on Care Coordination in California
Ideas on how to improve care coordination in California came flying fast when 18 members of the California Community Care Coordination Collaborative (5Cs) met January 9 to report on progress in their regions (shown in orange on the map at left). One speaker offered innovative suggestions on how to pay for care coordination. Another discussed how to create easy-to-use single topic resource lists for parents and providers, while a third described a project to develop an assessment and referral protocol for use by all care coordinators across a county health system. Learn more about the care coordination work of collaborative members.

See Related Opinion Piece: The Importance of Community for Care Coordination
Social capital – the benefit that arises from people working together toward a collective good with a sense of trust and shared values – appears to be declining in today’s society. One instance is seen in the system of care for children with special health care needs, where the most commonly cited characteristics are that the system is “fragmented” and “siloed.” Edward L. Schor, MD, senior vice president at the Lucile Packard Foundation for Children’s Health, reflects on how improving social capital in communities may lead to a better functioning care coordination system. Read more.

Network Members Comment on Proposed Changes to Title V Block Grants
The federal Maternal and Child Health Bureau (MCHB) has announced plans to transform the way Title V Block Grants are administered. These grants support maternal and child health programs, and at least one-third of the funds are earmarked for children with special health care needs (CSHCN). In California, Title V supports the California Children's Services (CCS) program. Several of the proposed Title V changes concern services for children with special needs. In response to a request for comment from the MCHB, a number of Network members submitted their suggestions, which were forwarded to Dr. Michael Lu, associate administrator of the MCHB (pictured at right). Read the Network members’ recommendations.


Santi Rogers to Head Department of Developmental Services
Santi Rogers, director of the San Andreas Regional Center, has been appointed director of the Department of Developmental Services (DDS), the Governor's office announced. He previously was director of the Agnews Developmental Center, the Porterville Developmental Center, and Stockton State Hospital. He served as deputy director of DDS in the 1980s.

California Medical Association Seeks Elimination of All Medi-Cal Cuts
Gov. Jerry Brown’s proposed 2014-15 budget calls for elimination of a retroactive 10 percent cut in Medi-Cal payments to health care providers. However, the California Medical Association (CMA) is advocating for elimination of any future cuts, noting that California is “still last on the nation’s Medicaid reimbursement list," according to California Healthline. Read more.


‘Final Rule’ Clarifies Home and Community-Based Services Waivers
Federal officials have issued a final rule clarifying what counts as home and community-based services (HCBS) for people with disabilities. Housing will not only be judged by its location or physical characteristics but also will have to meet criteria in order to qualify to be a home and community-based services (HCBS) provider. The purpose of HCBS waivers is to provide services for children and people with disabilities in home or community settings. For more information on the rule, see a slide show prepared by the National Association of States United for Aging and Disabilities (NASUAD). Also, the Center for Medicare and Medicaid Services will offer a public webinar explaining the rule on January 30 from 10 a.m. to noon Pacific Time.

Federal ‘Dear Colleague’ Letter Addresses Disparities in School Discipline for CSHCN
The U.S. Department of Education and the Department of Justice have developed guidelines designed to address disparities in discipline that affect students with disabilities. Children in special education represent about 12 percent of students nationally, but account for roughly 20 percent of suspensions and expulsions and nearly a quarter of school-related arrests. The guidelines emphasize that school personnel, not law enforcement, should handle routine discipline. Read the federal letter.


Academy of Pediatrics – Applications Due January 31
The Community Access to Child Health program of the American Academy of Pediatrics offers grants of $12,000 for pediatricians and fellowship trainees and $3,000 for pediatric residents in support of innovative initiatives to ensure that all children, especially underserved children, have medical homes and access to health services not otherwise available in their communities. Applications are due January 31. See application information.

Research – Applications Due February 28
The Disability Research and Dissemination Center has announced its annual call for applications for research grants. The center focuses on research that prevents birth defects and promotes the health and well being of people with disabilities. See details and key dates.


A report, Children with Special Health Care Needs in California: A Profile of Key Issues, is available online. Commissioned by the Lucile Packard Foundation for Children’s Health and produced by the Child and Adolescent Health Measure Initiative (CAHMI), the report is based on findings from the most recent National Survey of Children with Special Health Care Needs. Read the report.



Federal Data on Disabilities Assembled Online
Advocates, grantseekers, and program planners can find data on individuals with disabilities that are compiled by federal agencies in the Annual Disability Statistics Compendium. See the online tool.

New Publication – Friends: Connecting People with Disabilities and Community Members
A free online manual produced by the University of Minnesota Institute on Community Integration provides "how-to" strategies for supporting relationships between people with disabilities and other community members. Download the manual.


2014 Department of Health Care Services Stakeholder Advisory Committee Meeting
The 2014 DHCS Stakeholder Advisory Committee Meetings will be held in Sacramento from 9:30 a.m. to 3:30 p.m. The next meeting is Friday, February 21.

Family Voices of California 12th Annual Health Summit
Monday, February 24, 8:30 a.m. to 5 p.m.
Holiday Inn Capitol Plaza, Sacramento
Learn about pressing issues facing children and youth with special health care needs AND do something about it. Hear from experts, and build relationships with professionals and legislators in the State Capitol.

2014 School-Based Health Conference: Advancing School Health in a Time of Reform
March 6-7
Marriott City Center, Oakland
Tools, tips, and resources regarding education and health reforms.

2014 Disability Policy Seminar
April 15-17
Washington, DC
This annual gathering will feature public policy experts, advocates and Congressional staff discussing current key policies. Attendees will meet with their Congressional delegations. Learn more.

Let us know what's happening with your organization or family. E-mail Network Manager Janis Connallon at with your news or updates. Newsletter Editor: Eileen Walsh