10 Steps to Developing an Effective Shared Plan of Care
Achieving high-quality care for children with special health care needs requires a continuous collaborative effort by children/youth, families, and their care team. A comprehensive plan of care is essential to coordinating these efforts, yet there is no consensus on either the content of care plans or the process of plan development. A new report from the Lucile Packard Foundation for Children’s Health recommends core content of a comprehensive plan, and offers a step-by-step guide to creating one. Read the white paper and the implementation guide.



Member Profile: Tim Curley, Director, Community and Government Relations, Children's Hospital Central California
Whether it’s CCS, CHGME, DSH or ACA, Tim Curley follows them all. With years of experience in federal and state health policy, he keeps a close eye on the politics of paying for children's health care, including trends in Medicaid and managed care policy that affect children with special health care needs and their caregivers. Read more.


How Seniors, Persons with Disabilities View Their Move to Medi-Cal Managed Care
A new issue brief by researchers at the University of California, Berkeley, reports on a survey that queried more than 1,500 seniors and persons with disabilities who were among those required to switch from Medi-Cal fee-for-service to managed care beginning in 2011. Approximately 240,000 individuals in 16 counties had made the transition after a year under the “Bridge to Reform” waiver. The survey, supported by the California Department of Health Care Services (DHCS) and the California HealthCare Foundation, was designed to evaluate the enrollee experience and to identify groups of enrollees that would benefit from additional assistance during and after any future transitions. See the findings.

Proposed Ballot Measure Seeks to Stabilize Medi-Cal Funding
Advocates led by the California Hospital Association have submitted 1.3 million signatures in an effort to place the “Medi-Cal Funding and Accountability Act of 2014” on the November ballot. The act would stabilize Medi-Cal funding, and would ensure that funds provided through the state’s hospitals to draw down federal matching dollars are used only for Medi-Cal patients and health care for low-income children. Read more and see related Senate Bill 239, which became law in 2013.

Legislation to Bolster Medi-Cal Payments Moves Forward
Last week, the Assembly Committee on Health unanimously passed two bills designed to improve Medi-Cal payments. AB 1759 would require that payments for primary care services be 100 percent of Medicare payments, while AB 1805 would require the Department of Health Care Services to forgo the 10 percent payment reductions for Medi-Cal providers that were mandated in 2011. Read more.

2014 Department of Health Care Services Stakeholder Advisory Committee Meetings
May 7, 9:30 a.m. to 3:30 p.m.
1400 J Street, Sacramento Convention Center
Meetings are open to the public and available for listening at 1-888-673-9786, access code 6300402. Meeting materials can be found here.
For more information:


Editor’s Note: The current carve-out for California Children’s Services (CCS) expires at the end of 2015. The Network Newsletter will provide periodic updates on issues related to the future of CCS.

CRISS Conference to Feature Panel on Future of California Children’s Services
A panel discussion on “The Future of CCS and Ensuring Access for CSHCN” is scheduled as part of the Children's Regional Integrated Service System (CRISS) annual conference on May 9. Robert Dimand, MD, of California Children's Services, will speak on The Future of CCS in the Next Two Years and Beyond. Other panelists will discuss alternative models, family concerns and needs, and CCS data. The event is May 9, from 9 a.m. to 3 p.m. in the State Building, 1515 Clay Street, Oakland. Free nursing CEUs available. See the full agenda, and the flier and registration form.


Teleconference to Include Discussion of Family-to-Family Health Information Centers
The Association of Maternal and Child Health Programs (AMCHP) will hold a national policy teleconference on May 5 from 11 a.m. to 12:30 p.m. Pacific time. The call will cover a range of topics, including the recent Title V extension of the Family-to-Family Health Information Center program, which supports families of children with special health care needs and their care providers. Details and registration.


Family-Centered Care Coordination: A New Framework
The American Academy of Pediatrics (AAP) has just released a new framework for care coordination across multiple systems for children and youth. The AAP's Council on Disabilities and the Medical Home Implementation Project Advisory Committee co-authored the policy statement. See the article in Pediatrics.

How States Might Address Rural Care Coordination
A new issue brief from the National Academy for State Health Policy uses examples from six states to highlight ways to promote better care coordination for patients who live in rural areas, where disparities often exist in access to care and availability of services. Read more.


California parents report that only 2 out of 5 children ages 0-17 with special health care needs receive coordinated, ongoing, comprehensive care in a medical home, according to the most recent National Survey of Children with Special Health Care Needs. See the data on


How Is Covered California Working for Families?
Family Voices of CA is collecting stories about experiences with Covered California for families with children with special health care needs. Positive stories or information about problems/concerns are welcome. Family Voices will present these anecdotes to policymakers. Send your story to


United Cerebral Palsy Ranks States on Medicaid Services
California ranks 13th in a new study from United Cerebral Palsy that annually ranks how well state Medicaid programs serve Americans with intellectual and developmental disabilities. The Case for Inclusion ranks all 50 states and the District of Columbia, not on their spending but on their outcomes, and compares states. See the study.


Federal Opportunity for State Governments: Enhancing the System of Services for CSHCN
The Health Resources and Services Administration seeks applications from state governments for the 2014 State Implementation Grants for Enhancing the System of Services for Children and Youth with Special Health Care Needs through Systems Integration. The grants are intended to increase the number of children and youth with special health care needs who receive a patient/family-centered medical/health home approach to comprehensive, coordinated services and supports. Applications due June 13. See details.

Let us know what's happening with your organization or family. E-mail Network Manager Janis Connallon at with your news or updates. Newsletter Editor: Eileen Walsh