The Future of CCS: In New Report, Stakeholders Offer Views on Key Issues to Be Considered
More than 50 stakeholders responded to a request to offer their thoughts on the major issues that should be addressed if changes are made to the California Children's Services (CCS) program. Currently, the CCS "carve-out" from Medi-Cal managed care is scheduled to end in December 2015. Respondents - including families, health care providers, advocates, insurers, and state and county officials - raised a wide range of issues for consideration, and offered many divergent views on how they should be addressed. A new report outlines their thoughts and also presents a design framework for alternative options if a CCS redesign takes place. Read the full report.


Profile: Providing Lively Day Care for Medically Fragile Children
At Caring Corner, a pediatric day health center in Bakersfield, nursing director Meg Molloy oversees care for dozens of medically fragile children – "but we don't treat them like they're sick," she says. Read more.
Summary Version: Standards for a High-Quality System of Care for CSHCN
A recent report from the Lucile Packard Foundation for Children's Health provided a set of standards of care for a high-quality system of care for children with special health care needs, along with information on how the standards were developed. A summary table that lists only the standards is now available. Download the summary table.


Advisory Panel for Medi-Cal Families to Meet May 27; Replaces Healthy Families Advisory Board
In January, children enrolled in the Healthy Families Program were moved into Medi-Cal. The existing Healthy Families Advisory Panel was transferred to the Department of Health Care Services (DHCS), and is now known as the Advisory Panel for Medi-Cal Families. Members provide feedback to the department on policies, regulations, operations and implementation of programs. The third meeting of the new panel will be held on May 27 from 10 a.m. to 1 p.m. at 1700 K Street, Sacramento, and is open to the public. View the agenda, background information and call-in details.

In a related development, a bill has been introduced in the Assembly (AB 357-Pan) that would “rename and recast” this group as “The Children's Health Advisory Board,” an independent, statewide advisory body charged with developing a plan to improve children's health care delivery across the state.

State Considering Including ABA Therapy in Medi-Cal
California is monitoring policy decisions in other states as it considers adding Applied Behavior Analysis (ABA) therapy as a benefit under Medi-Cal, California Healthline reports. Coverage for ABA is currently required under commercial health care plans, but is not a Medi-Cal benefit. Read the article.


In Absence of Subspecialists, Perceived Need and Use Both Decline
A new national study published in Pediatrics found that in counties with the lowest number of pediatric subspecialists, families of CSHCN were less likely to report a need for subspecialty care and less likely to obtain it. On the other hand, families' use of emergency departments in those counties was higher. Read the abstract.

Engaging Providers in Building Managed Care Delivery Systems: Tips for States
As states develop managed care programs for individuals who require long-term care, they may wish to involve medical, behavioral health, and home- and community-based service providers, as well as hospitals and nursing facilities, to identify key issues. Research supported by The Commonwealth Fund and the SCAN Foundation offers strategies for engaging providers. Read more.

The Commonwealth Fund's Health System Scorecard: Mixed Results for Children
The 2014 Commonwealth Fund scorecard on state health system performance reports some positive news for children, such as a lower rate of asthma hospitalizations. Other health care indicators, such as the proportion of children with a primary care “medical home,” showed less positive results. See full details.


Health, Behavior, and Healthy Behavior for Children and Adults with Intellectual/Developmental Disabilities
Friday, May 16, 2014
11 a.m. to noon
Sponsored by the Association of University Centers on Disability, this webinar will review health-related considerations and the importance of understanding health promotion in preventing unnecessary medical and behavioral complications for people with intellectual/developmental disabilities. Register here.

2014 Speaker Series on California's Future: Health Care Reform in California
Monday, May 19, 2014
12 p.m. to 1:30 p.m. (registration 11:45 a.m.)
A panel discussion about results to date of California's implementation of health care reform, featuring Diana Dooley, Secretary of California Health and Human Services Agency. Read more and register for the webcast.


Pacific Rim International Conference on Disability and Diversity
May 19 and 20, 2014
Honolulu, HI
Hawaii Convention Center
Learn more and register.

Let us know what's happening with your organization or family. E-mail Network Manager Janis Connallon at with your news or updates. Newsletter Editor: Eileen Walsh