Study: Opportunities to Improve Outcomes, Decrease Costs During Transition
Thanks to medical advances, more than 90 percent of children with chronic illnesses now reach adulthood. This success presents new challenges for these young adults with complex conditions and for a health care system that frequently lacks the capacity to serve them. A new Stanford issue brief, funded by the Lucile Packard Foundation for Children's Health, suggests that opportunities exist to improve clinical outcomes, enhance patient, family and provider experiences, and decrease per capita health care spending. Read the brief.

Also see: Study shows technology improves transition into adulthood for adolescents with chronic disease.


Stakeholders Exploring a Regional Model for Services
In anticipation of potential changes to the California Children’s Services (CCS) program, representatives from a number of organizations have begun meeting to explore possibilities for a regional model of services. This Bay Area Regional Model would assume responsibility for the provision of all health care to more than 20,000 CCS enrollees in a 6-8 county region. Participants involved in developing the model include Alameda, Contra Costa, Humboldt, Marin, Mendocino, Monterey, San Francisco, and Santa Clara county CCS programs; California Children’s Hospital Association; Lucile Packard Children’s Hospital Stanford, UCSF Benioff Children’s Hospital, and UCSF Benioff Children’s Hospital Oakland; Kaiser Permanente Northern California; Family Voices of California; local family resource organizations (Family Resource Network of Alameda County, CARE Parent Network); and the Children’s Specialty Care Coalition. For information about future meetings, contact Katie Schlageter, Alameda County CCS Administrator, at


See the Newsletter Survey Results
Many thanks to the more than 100 subscribers who took the time to answer our Network Newsletter survey. The responses were highly positive, and your helpful suggestions will shape our content going forward. The gift card winner has been notified. See a brief summary of the findings.
How State-Based Partnerships Can Improve Child Health
Fifteen states have established successful partnerships that unite public and private sectors in improving the quality of children's health care. Using examples from three states, a newly published report illustrates how care providers, payers and clinicians have collaborated on quality improvement initiatives. The research was published by the Lucile Packard Foundation for Children's Health. Read the report.


June 6 Deadline for Comments on State’s Title V Application; Includes CSHCN Funding
The State of California is seeking public comment on its draft annual application for funding from the Title V Block Grant from federal the Maternal and Child Health Bureau. Title V funds services for pregnant women, mothers, infants, children and adolescents, including children with special health care needs. The application includes information about current Title V-funded activities and data on health indicators. Comments, which are due by June 6, should be sent to For information, call (916) 650-0300 or write to Renato Littaua at

$13 Million Sought to Restructure Developmental Centers
Santi Rogers, director of the Department of Developmental Services, on May 16 outlined the Brown Administration's $13 million plan to restructure the state's developmental centers. Included in the plan, which was presented to the Assembly Budget Subcommittee on Health and Human Services, are funds to develop six behavior support centers and two community crisis homes, as well as additional funds for regional centers, among other projects. Read more.

“Health for All Act” Stalls in Senate; Would Offer Health Insurance to Undocumented Residents
Senate Bill 1005 (Lara), which would extend health insurance to undocumented residents, was placed on hold by the Appropriations Committee on May 23. Sen. Lara has said that he will work with fellow legislators over the summer to try to find funds to cover the costs. A new study from the UCLA Center for Health Policy Research found that adding undocumented citizens to health coverage would benefit California substantially at a relatively low cost. Read the journal article and a related policy brief.

EpiPen Bill Advances
The Senate Appropriations Committee on May 23 advanced SB 1266, which would require school districts to stock emergency EpiPens (epinephrine auto-injectors), so that trained personnel could provide emergency care. The bill now goes to a third reading.


The California Coordinated Care Initiative: What Advocates Need to Know - Basics
Thursday, June 5, 2014
1 p.m. to 2 p.m. PDT
National Senior Citizens Law Center
The State of California is moving forward with implementation of the Coordinated Care Initiative (CCI), which changes the way that dual eligible beneficiaries and other low-income seniors and persons with disabilities get their health care. This training series educates advocates on the changes and their impact on clients. Register.


Discharge Medications a Factor in Hospital Readmissions for Kids with Complex Conditions
Children with complex chronic conditions constitute a disproportionate number of hospital readmissions. A new study in Hospital Pediatrics assesses factors associated with increased risk of readmission to acute hospitals of children discharged from a subacute facility. The study found the number of discharge medications to be a significant risk factor for readmission. Read the abstract.


California Consortium on Higher Education for People with Intellectual and Developmental Disabilities
June 4, 2014
9 a.m. to 12:30 p.m.
Sacramento City College, 3835 Freeport Blvd., Sacramento
A bi-annual event that brings together educators, professionals working in disability services, families and self advocates to discuss issues and resources related to transition and higher education for young people with intellectual and developmental disabilities. Download the Event Registration flyer.

Healthy Communities Data Summit at UCLA
June 11, 2014
Los Angeles, CA
This conference will showcase technologies, programs, and data designed to improve patient access, health care quality and consumer engagement. Learn more and register.


Due June 13: Federal Opportunity for State Governments: Enhancing the System of Services for CSHCN
The Health Resources and Services Administration seeks applications from state governments for the 2014 State Implementation Grants for Enhancing the System of Services for Children and Youth with Special Health Care Needs through Systems Integration. The grants are intended to increase the number of children and youth with special health care needs who receive a patient/family-centered medical/health home approach to comprehensive, coordinated services and supports. Applications due June 13. See details.

Let us know what's happening with your organization or family. E-mail Network Manager Janis Connallon at with your news or updates. Newsletter Editor: Eileen Walsh