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Request for Proposals: Enhancing Local Care Coordination
The Lucile Packard Foundation for Children's Health seeks proposals for a second phase of grant funding for the California Community Care Coordination Collaborative (5Cs). The Collaborative's goal is to improve community systems of care coordination for children with complex or chronic medical conditions. Grantees work together on local solutions, and also participate in a multi-site learning collaborative. New grantees will be mentored by 5Cs grantees from 2013-14. The deadline for proposal submission is September 19. A pre-application webinar is scheduled for July 17. Read the Request for Proposals. Find information about the work of current 5Cs grantees here.
Care Coordination — What California Can Learn from Other States
How do other states address the complex issue of providing quality care coordination for children with special health care needs? A just-released report commissioned by the Lucile Packard Foundation for Children's Health outlines the key components of an effective, sustainable care coordination system, examines approaches to care coordination in six states other than California, and offers considerations for options in California’s unique environment. Read the report.
Study: Care Coordination, Medical Homes and Unmet Specialty Care Needs
Care coordination, particularly when it is delivered in a medical home, is associated with family report of a decrease in unmet specialty care needs among children with special needs, independent of household income, according to an article published in Pediatrics. Read the abstract.


Family Voices Launches ‘One in Five’ Campaign
to Highlight Children with Special Health Care Needs

Keeping families at the center of children's health care is always the priority of Family Voices, says Lynda Honberg, mother of a young adult with special health care needs and director of strategic partnerships for the national advocacy group. Read more>>

See also: Family Voices Project IMPACT Health & Wellness in Action


Signed Budget Does Not Restore Medi-Cal Provider Reimbursement Levels
On June 20, the Governor signed the $156.3 billion FY 2014-15 state budget. The budget covers the expense of adding 2 million new enrollees to Medi-Cal, but does not restore the pre-recession spending levels for the Medi-Cal program, which many advocates had requested. Read more.


Federal Bill to Allow Health Care Networks to Provide Care Across State Lines
Legislation that would allow pediatric health care providers to form networks across state lines was introduced June 20 in Washington, DC. The Advancing Care for Exceptional Kids Act of 2014 (H.R. 4930) would make it possible for networks to bypass the Medicaid regulations that currently vary by state and create roadblocks to obtaining optimal care for many families of children with medically complex conditions. The Children's Hospital Association supports the bill.

Reauthorization Proposed for Children's Health Insurance Program
The CHIP Extension Act of 2014, a bill to reauthorize the Children's Health Insurance Program for four years, has been introduced by Sen. John D. Rockefeller IV (D-WV). The bill also offers some refinements to the current program, authorized in 2009. Read the bill.



Got Transition's Updated Website Offers New Features
Got Transition, a project that uses new and innovative strategies to improve transition from pediatric to adult health care, has launched a redesigned website. The site includes a set of frequently asked transition questions developed by and for youth/young adults and families, as well as new information for researchers and policymakers and a list of transition resources. It also features an interactive section for health providers on the Six Core Elements of Transition, including clinical resources and measurement tools that can be used in three practice settings. See the site.

  • Why Oral Health Is Important for Children with Special Needs & How to Access It is a new web page and tip sheet from the National Center for Family-Professional Partnerships. See related issue brief.
  • Dare to Dream: In this video, high school seniors talk about the terms by which they have been “classified,” and then describe the “real me.”
  • The Center for Connected Health Policy works toward a health care delivery system in which telehealth technologies are essential tools for improving health care access, quality, and efficiency.

Let us know what's happening with your organization or family. E-mail Network Manager Janis Connallon at with your news or updates. Newsletter Editor: Eileen Walsh