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CCS Regional Stakeholders Developing Proposal for DHCS; Next Meeting July 25
Representatives from organizations concerned about potential changes to the California Children's Services (CCS) program continue to meet to develop a concept paper that they plan to present to the Department of Health Care Services in the fall. The paper will propose a regional CCS model in a managed care environment that stakeholders and DHCS both can support, organizers say. The next meeting will be on Friday, July 25, from 10 a.m. to noon at the Alameda County Public Health Department, 1000 Broadway, Oakland. The meeting is open to the public, but an RSVP is requested. Please contact

Speakers' Slides Available from Conference on Covered California, Future of CCS
The Devil Is in the Details: Coordinated Care under Covered California was the topic of the annual conference of the Children's Regional Integrated Service System (CRISS) on May 9 in Oakland. The event featured a wide range of experts, including parent advocates, care providers and state officials. One panel focused on the future of California Children's Services (CCS) and how to ensure access to care for children with special health care needs. The speakers' PowerPoint presentations now are available on the CRISS website. Scroll to the Latest News section toward the bottom of the home page.



Reminder: July 17 Pre-Application Webinar for Care Coordination Grants
The Lucile Packard Foundation for Children's Health is offering 18-month grants to assist community-based, multi-agency coalitions to improve local systems of care coordination for children with special health care needs. A Pre-Application Webinar for these California Community Care Coordination Collaborative (5Cs) grants will be held on Thursday, July 17, at 1 p.m. PDT. To register, click here.



California Parent Advocacy Strengthened Through Family Voices Training
Pip Marks, manager of Family Voices of California, talks about the promising results of a new program to help families learn to advocate effectively for their children with special health care needs. Thirty family members already have graduated from the training and are becoming active. Read more>>


Advisory Panel for Medi-Cal Families to Meet July 31
The Advisory Panel for Medi-Cal Families, formerly the Healthy Families Advisory Panel, will meet July 31 from 10 a.m. to 1 p.m. in Sacramento. The panel, which is composed of 15 members (PDF), makes recommendations to the Department of Health Care Services. For more information click here or write to See the meeting agenda (PDF), which includes the call-in number for those who can't attend in person.

Some Early Start Funds Restored
Funding for the Early Start program, which provides a range of services to children under age 3 with developmental delays, will be restored to the level it had reached before the economic downturn forced budget cuts, according to the California Health Report. Read the article.



Feds Clarify Medicaid Coverage for Autism Spectrum Disorder
The Centers for Medicare & Medicaid Services (CMS) on July 7 released an information bulletin for states that provides guidance on coverage of services available to children with autism spectrum disorder (ASD) under Medicaid. The bulletin indicates that ASD is covered under mandatory Early and Periodic Screening, Diagnostic and Treatment (EPSDT) services, which cover children up to age 21. Read the bulletin (PDF).



Guide: Using Intensive Care Coordination for Children with Serious Behavioral Health Needs
Mental health issues are among the most costly health condition for children in the US. The Center for Health Care Strategies notes that a program of intensive care coordination using high-quality wraparound services has demonstrated improved outcomes and reduced costs for children and youth with serious behavioral health needs and their families. The Center has issued a guide to help states and communities that are considering such programs to understand how they can be structured, implemented, and evaluated. Read more.

Other Useful Resources:
  • Caregiver Emotions is the topic of the July edition of Complex Child, a newsletter created by parents of children with special needs.
  • Effective Communications for People with Disabilities: Before, During and After Emergencies has been published by the National Council on Disability. Read the report.


Partnering with Patients, Families, & Communities to Link Inter-professional Practice and Education
Tuesday, July 22, 2014
10 a.m. to 11 a.m. PDT
Macy Foundation
A web conference to discuss moving beyond what is typically thought of as "patient engagement" efforts to integrate patients and families as partners. The webinar will address recommendations in a new report – Partnering with Patients, Families, and Communities: An Urgent Imperative for Health Care. Learn more and register.



Let us know what's happening with your organization or family. E-mail Network Manager Janis Connallon at with your news or updates. Newsletter Editor: Eileen Walsh