A newsletter to inform advocates for CSHCN about current issues and opportunities to express their opinions to policymakers and program administrators.


Introductory Meeting Set for CCS Redesign Stakeholder Advisory Board
The first meeting of the CCS Redesign Stakeholder Advisory Board (RSAB) is scheduled for December 2 from 11 a.m. to 4 p.m. at the Shriners Hospital for Children in Sacramento. The meeting is open to the public, but space is limited. A "listen-only" call-in line will be available. Details will be posted on the redesign website as they become available. Members of the RSAB will be announced when those invited to serve have accepted. The CCS redesign process will result in compilation of recommendations to be submitted to the Department of Health Care Services in July 2015. Write to the UCLA CCS Redesign Team at CHPR_CCS@em.ucla.edu with any comments or questions.



Latino Children and Special Health Care Needs
A new study on the health of Latino children in California finds that while fewer Latino children than white children are reported by their parents as having a special health care need, those needs have a greater impact on daily activities and require more complex services. The most common special needs cited by Latino parents include learning disabilities, ADHD and asthma. See the study.
Profile: Janine Woods, Director, Maternal, Child and Adolescent Health, Monterey County Department of Health
Public health nurse Janine Woods has an insider's view of the unique challenges faced by foster children with special health care needs—and the social welfare and medical professionals trying to help them. Read more about her work.
In case you missed it: Family-Centered Care and CSHCN: What Does the Literature Tell Us?



Tools to Bolster Local Care Coordination Efforts
As the first round of grants for the California Community Care Coordination Collaborative (5Cs) comes to a close, we occasionally will feature ideas from participating groups about how to address care coordination in local communities and products these coalitions have developed that may be of use to others. In this issue, we highlight a Collaborative Checklist developed by one coalition to assess the evolution of its work over the grant period. Six of the county coalitions adopted the tool. Read more.



Clarification on Behavioral Health Therapy
The Department of Health Care Services has updated its Stakeholder Resources and Materials website to include clarification that Behavioral Health Therapy (BHT) services for children under age 21 to treat autism spectrum disorder are consistent with services described in the state plan. Also, materials from the October 16 BHT stakeholder meeting, including a video and slides, are posted on the site. Email ABAinfo@dhcs.ca.gov with any questions.



Group Classes Teach Parents Effective Autism Therapy, Stanford/Packard Study Finds
Parents can learn to use a scientifically validated autism therapy with their own children by taking a short series of group classes, a new study by researchers at the Stanford University School of Medicine and Lucile Packard Children's Hospital Stanford has found. The study, which was published October 27 in the Journal of Child Psychology and Psychiatry, is the first randomized, controlled trial to test whether group classes are a good way to train parents on using an autism therapy. Read more.



Addressing Bullying of Children with Special Needs
The U.S. Department of Education has sent a letter (PDF) to the nation's schools reminding them of federal laws and protections that require educators to intervene when bullying of students with disabilities is suspected or observed. Read more.

Renewal of Children's Health Insurance Program Still Pending in Congress
Extending federal funding for the Children's Health Insurance Program (CHIP), which provides coverage for children in families who earn too much to qualify for Medi-Cal, remains on the Congressional agenda. The cost for renewal is estimated at $88.7 billion for five years; the current program expires in 2015. Opponents say children can be covered under the Affordable Care Act, but advocates say there will be gaps in coverage. A question is whether Congress will consider a major overhaul or make small changes. Read more.



Open Enrollment Starts November 15
Check the Covered California website for information on how to apply for, renew or change health care coverage for 2015. Open enrollment begins November 15, 2014 and ends on February 15, 2015.
Also see: Six Steps to Select the Health Plan That's Right for Your Family



Update from Family Voices
Family Voices has released its 2014 annual report, featuring stories of families from around the United States, along with accomplishments and financial information. Read the report.





How Toxic Stress Impacts California's Children, Families, and Communities
Children Now, Center for Youth Wellness, Californians for Safety and Justice
See also: Powerpoint Slides (PDF) from the webinar

Let us know what's happening with your organization or family. E-mail Network Manager Janis Connallon at Janis.Connallon@lpfch.org with your news or updates. Newsletter Editor: Eileen Walsh