A newsletter to inform advocates for CSHCN about current issues and opportunities to express their opinions to policymakers and program administrators.

NOTE: The Newsletter will not publish on Thanksgiving, November 27. The next issue is scheduled for December 4, but in the interim we will send announcements of any major developments.



December 2: First Meeting of CCS Redesign Stakeholder Advisory Board
The CCS Redesign Stakeholder Advisory Board (RSAB) will hold its first meeting on December 2 from 11 a.m. to 4 p.m. at the Shriners Hospital for Children in Sacramento. The meeting is open to the public, but space is limited. Contact CHPR_CCS@em.ucla.edu to register. A "listen-only" call-in line also will be available. More information will be posted on the redesign website. The CCS redesign process will result in compilation of recommendations to be submitted to the Department of Health Care Services in July 2015. See tentative dates (PDF) for future RSAB meetings.
Also see: Key Components of a System for Publicly Financed Care of CSHCN in California and
Standards for Systems of Care for Children and Youth with Special Health Care Needs

Tomorrow: Local CCS Stakeholders to Complete Redesign Recommendations
The strengths and limitations of three proposed models for CCS redesign will be the topic of the final meeting of the Northern California CCS Stakeholders Group that has met over the past year. A document outlining the three models will be discussed, and a final report will be submitted to the Department of Health Care Services for consideration in the redesign process. The meeting, from 9 a.m. to 11 a.m. on November 14 in Oakland, is open to the public, but an RSVP is requested. To attend, contact Will.Hickling@acgov.org. You also may participate through a call-in number, (888) 675-2535, access code 3620086.

CCS Survey Seeks Opinions of Paneled Physicians
CCS is required to conduct a needs assessment every five years to identify priorities for improving services for children with special health care needs. As part of this year's assessment process, the Family Health Outcomes Project at UCSF is conducting an online survey of physicians. CCS-paneled physicians may complete the short survey and provide feedback on how well the program is working and what the priorities should be for the next five years. The information gathered also will be used in discussions regarding redesigning the state's 1115 waiver, which includes CCS.

New Facebook Site for Families Regarding CCS
A group of parents has launched a Facebook page with the goal of engaging families in state policy work regarding children with special health care needs. The group aims to encourage families to learn about the programs that affect their children and make their voices heard. Visit the page.



Hospital Discharge: ReadySetGo
At a recent "Hacking Pediatrics" hackathon in Boston, a new app called ReadySetGo took the top prize, earning $3,000 and a coveted slot in a Boston-based startup incubator. The app aims to help parents and caregivers better prepare for their children's discharge from the hospital. It's a fortuitous—but unexpected—outcome of research supported by the Lucile Packard Foundation for Children's Health. Nearly 10,000 children are discharged from U.S. hospitals every day, yet no widely used pediatric standards for discharge care exist. Learn more about the Hackathon and the ReadySetGo app.


New Medi-Cal Children's Health Advisory Panel Seeks Public Comment, Nominees
A bill signed by Governor Brown in September established the new Medi-Cal Children's Health Advisory Panel (MCHAP) as a successor to the Healthy Families Advisory Board, which was dissolved when children in the Healthy Families program were transferred to Medi-Cal. The law goes into effect January 1 and the Department of Health Care Services now is soliciting recommendations to establish areas of focus for the panel to address regarding children in Medi-Cal. Recommendations and comments should be submitted by December 15 to MCHAP@dhcs.ca.gov. The ideas will be discussed at the MCHAP meeting scheduled for January 5, 2015.

Additionally, the Department is requesting nominations for members to serve on the panel, specifically a licensed practicing dentist, a representative from the education community, and a county public health provider representative. Recommendations are due by December 1. Information and submission forms are available on the panel webpage.

'Bridge to Reform' Waiver Advisory Committee to Meet December 3
The group that advises the Department of Health Care Services on the upcoming 1115 Bridge to Reform Waiver application will meet from 9:30 a.m. to 3 p.m. December 3 in the Sacramento Convention Center, 1400 J Street, Room 203-204. For more information on the Waiver, which includes CCS, see the website or write to SACinquiries@dhcs.ca.gov. The current list of Advisory Committee members is available on the site.

November 18: Next Meeting for Autism Stakeholders
A Department of Health Care Services meeting is set for 3 p.m. to 5 p.m. November 18 regarding behavioral health treatment for children and youth with autism disorders. The public meeting is at 1500 Capitol Avenue, Sacramento, in the Auditorium. If you can't attend in person, register for the webinar/teleconference. For more information, see the webpage or write to ABAinfo@dhcs.ca.gov.
  Related Webinar: Medi-Cal and Coverage for Behavioral Health Treatment for Autism
Wednesday, December 3, 2014
12 p.m. to 1:30 p.m. Pacific Time
Family Voices of California
Kristin Jacobson, President and Founder of the Autism Deserves Equal Coverage Foundation, will present on the new autism treatment coverage benefits under Medi-Cal. Read details and register.


New Guidance on Rights of Students with Hearing, Vision, Speech Disabilities
The federal government has issued a letter to educators (PDF) (en español) and a Frequently Asked Questions (PDF) document to assist schools in complying with federal legal requirements on meeting the communications needs of students with disabilities. Guidance for parents is available through a fact sheet (PDF) (en español).



Opportunities for Enhancing Pediatric Emergency Care: Planning and Processes to Improve Pediatric Access to Specialty Care
Monday, November 17, 2014
1 p.m. to 2:30 p.m. Pacific Time
Emergency Medical Services for Children Program
Emergency care often is not available for children in rural areas and other regions where services are limited. This program will highlight practices and lessons learned in implementing components of regionalized systems that allow providers and facilities to organize and share resources within a given geographic area. James Marcin, MD, director of the Pediatric Telemedicine Program at UC-Davis Children's Hospital, is one of the presenters. Continuing education credits are available. Read more and register.
See also: Assuring Children's Access to Pediatric Subspecialty Care in California



Don't Forget: Covered California Enrollment Starts November 15
Apply for, renew or change health care coverage at the Covered California website. Updates may be made through February 15, 2015.
  Related Webinars:

Health Coverage Basics I
Monday, November 17, 2014
2 p.m. to 3 p.m. Pacific Time
California Family Resource Association
Prepares Family Resource Centers to link clients to health coverage and services. Serves as an introduction or update on coverage options, and provides a helpful refresher to prepare for Open Enrollment. Read more and register.

Healthcare Renewals and Eligibility II
Tuesday, November 18, 2014
2 p.m. to 3 p.m. Pacific Time
California Family Resource Association
Provides more in-depth information on healthcare renewals and eligibility. It will include resources and specific examples that are relevant to a range of families and scenarios, including Latino and Asian immigrant populations. Read more and register.


How Well Do College Health Centers Service Students with Chronic Health Issues?
Many students with chronic medical conditions attend US colleges, but little is known about the policies, practices and resources of campus health centers to serve these students. A study published in Pediatrics finds that relatively few colleges have the capacity to identify and contact youth with medical conditions, but many are able to provide primary care and management of some conditions. The authors suggest that guidelines for transition to adult care should address policy and practices for pediatricians and colleges to enhance co-management of students. Read the article.

Youth Group Offers 'Guide to Becoming Independent'
The YEAH Council (Youth for Education, Advocacy and Healthcare) has produced an online tool for young adults with chronic health conditions. Ready? Get Set. Go! offers checklists and tips prepared by youth on how to live independently, make good health care decisions and various other topics. YEAH is a program of New Hampshire Family Voices. Download the guide (PDF).





Let us know what's happening with your organization or family. E-mail Network Manager Janis Connallon at Janis.Connallon@lpfch.org with your news or updates. Newsletter Editor: Eileen Walsh