A newsletter to inform advocates for CSHCN about current issues and upcoming opportunities to express their opinions to policymakers and program administrators.
CALIFORNIA CHILDREN'S SERVICESCCS Redesign Workgroups Defined; Some Usage Data Posted
Six technical workgroups have been proposed as part of the work of the CCS Redesign Stakeholders Advisory Board (RSAB). The workgroups will address data, eligibility, provider access/network, county-state relationships, quality measures, health homes, care coordination and transition. Read the workgroup descriptions (PDF). Also, a preliminary dataset regarding some CCS expenditures has been posted on the redesign website. The next RSAB meeting is scheduled for Friday, March 20, at the Sacramento Convention Center, 1400 J Street, time to be announced. Call-in number (listen only) is (888) 921-8686. Passcode is 961-640-6431. Details about the Advisory Board are posted on the website. Write to CHPR_CCS@em.ucla.edu with comments or questions.
DID YOU KNOW?Bullying/Harassment and Special Needs
Kidsdata.org has posted new student-reported data on bullying/harassment for reasons of disability. Data are available by gender and grade level, connectedness to school and race/ethnicity, among other categories.
CALIFORNIA POLICYCoalition Rallies for Increased Developmental Services Funding
The Lanterman Coalition, composed of 19 California organizations, is seeking support for its 10 for 10 Campaign to increase funding by 10 percent immediately for the state's developmental services system and programs. The coalition held a rally in Sacramento on March 4. Read more.
Key Upcoming Meetings
CALIFORNIA COMMUNITY CARE COORDINATION COLLABORATIVE (5Cs)Committed Coalitions
Grant funding always provides a welcome boost, but two coalitions that are members of the 5Cs are finding ways to carry on their shared care coordination work without outside support. Read their stories.
NATIONAL POLICYHow King vs. Burwell Might Affect California Health Exchange
Opening arguments were presented March 4 in King vs. Burwell, a case before the Supreme Court that challenges the legality of federal subsidies for low- and middle-income people who buy health insurance in the 34 states that have federally run health exchanges. California is not among those states, but advocates are concerned that Californians could be indirectly affected. See One View of How the King vs. Burwell Ruling Might Affect California's Minorities, a Commonwealth Fund series on the potential impact of the case on providers, insurers and consumers, and Supreme Court Appears Split in Challenge to Affordable Care Act.
Other useful resources:
RESEARCHCost Saving and Quality of Care in a Pediatric Accountable Care Organization
A study of Partners for Kids, a pediatric Accountable Care Organization (ACO) serving a population of children covered by Medicaid in Ohio, found that between 2008 and 2013 the ACO was able to reduce the growth in costs without diminishing the overall quality or outcomes of care. Read the study.
IN THE NEWS
WEBINARSSeries for Providers: Transition of Patients with Special Health Care Needs to Adult Medical Care
Seven-Part Series – Third segment March 11
Topic: Adolescence to Adulthood and Assumption of Responsibility for Self-Care for Patients with Disabilities
New York – Mid-Atlantic Consortium for Genetic and Newborn Screening Services
Designed to give health care providers the tools and understanding necessary to care for young adults with special health care needs who are transitioning from pediatric to adult care providers. Patients and families are encouraged to attend to better understand their role in medical care transition. Learn more and register.
EVENTS13th Annual Family Voices of California Health Summit and Legislative Day
March 16-17, 2015
8:30 a.m. to 5:30 p.m.
Holiday Inn Capitol Plaza, 300 J Street, Sacramento
Learn more and register.
Learning and Growing in the Early Years
April 17-18, 2015
Infant Development Association of California
Riverside Convention Center, 3637 Fifth Street, Riverside, CA 92501
Registration and Fee Details
Advancing Equity in Education & Health Care, School Health Conference
May 1, 2015
The California School-Based Health Alliance
Bahia Resort Hotel, San Diego
Health care providers, educators and children's health supporters will consider how to advance their collective mission to give all children an opportunity to succeed. Learn more and register.
WE'D LIKE TO HEAR FROM YOU
Let us know what's happening with your organization or family. E-mail Newsletter Editor Eileen Walsh at Eileen.Walsh@lpfch.org with your news or updates.