A newsletter to inform advocates for CSHCN about current issues and upcoming opportunities to express their opinions to policymakers and program administrators.



Redesign Advisory Board to Meet March 20; Technical Workgroups Under Way
CCS Models of Care are the focus for the third meeting of the Redesign Stakeholders Advisory Board on Friday, March 20. The agenda (PDF) includes presentations on proposed CCS models from the California Children’s Hospital Association and the Bay Area Stakeholders group, as well as presentations on models currently operating around the state. A discussion of the Medical Therapy Program also is planned. The meeting is scheduled from 9:30 a.m. to 4:30 p.m. at the Sacramento Convention Center, 1400 J Street. The call in number (listen only) is (888) 921-8686. Meeting ID is 961-640-6431. Details about past and upcoming board meetings are posted on the website.

The Advisory Board also will hear updates on its six technical workgroups, which have just begun meeting. See details on how to listen to workgroup webinars and conference calls. The workgroups (PDF) will address data, eligibility, provider access/network, county-state relationships, quality measures, health homes, care coordination and transition.



Promoting a Life Course Approach to the Health of Children with Special Needs
Life Course Theory, which promotes a life-span approach to an individual’s health, is taking hold in adult medicine, but adoption has been slow in pediatric practices. A new paper proposes a roadmap for developing a framework to help pediatric practices become life course settings for children with special health care needs. Read the report.


Medi-Cal Children’s Health Advisory Panel Tackles Breadth of Topics
Access and rates, network adequacy in managed care, enrollment figures and dental program updates were among the topics scheduled for discussion at the Medi-Cal Children’s Health Advisory Panel meeting on March 18. Materials from the meeting are available online, and the minutes will be posted when available. The panel advises the Department of Health Care Services on policy and operational issues that affect children in Medi-Cal. The next meeting is set for May 18. Find details and background about the work of the panel on its website.

See also Frustration Boils at Denti-Cal Hearing.

State Posts Draft of 1115 Waiver Application
On March 16, the Department of Health Care Services released a draft of its Section 1115 Waiver Renewal application, which will be submitted to the federal Centers for Medicare & Medicaid Services at the end of March. Waivers allow states to design their own Medi-Cal and children’s health insurance programs. More information about the California waiver is available on its website, and comments can be sent to WaiverRenewal@dhcs.ca.gov. Read the proposal (PDF).



The Changing Landscape for Children with Special Health Care Needs in California: Roundtable
April 3
10 a.m. - 3 p.m.
Alumni House, UC Berkeley
Maternal and Child Health Program, School of Public Health

Shifts at the state and federal levels have brought changes to services for CSHCN. These changes highlight ongoing issues with systems integration and other challenges and opportunities for improving systems of care. Experts, including Laurie Soman and Edward Schor, MD, will comment on the current landscape, followed by round table discussions. All are welcome. Learn more and register. $25 fee includes lunch.

6th Annual Pediatric Genomics Conference
April 8-10
Children’s Mercy, Kansas City
Learn more and register.



Online Filing Available for Americans with Disabilities Act Complaints
Beginning this month, Americans with Disabilities Act complaints may be filed electronically with the Department of Justice. See the form and go to the website for more information.



Series for Providers: Transition of Patients with Special Health Care Needs to Adult Medical Care
Seven-Part Series – Fourth segment, March 25
Topic: Insurance Concerns and Solutions – How Does the ACA Impact This Population?
New York–Mid-Atlantic Consortium for Genetic and Newborn Screening Services
Designed to give health care providers the tools and understanding necessary to care for young adults with special health care needs who are transitioning from pediatric to adult care providers. Learn more and register.

Common Core and Special Education: What Families Need to Know
Thursday, March 26
10-11 a.m. Pacific Time
Children’s Hospital Los Angeles, USC University Center for Excellence in Developmental Disabilities
For family members, people with developmental disabilities, and advocates. Professionals are welcome. Read more and register by March 25 (PDF).

Engagement of Family Leader Organizations in Non-CSHCN Initiatives
Thursday, March 26
Noon-1 p.m. Pacific Time
Family Voices National Center for Family/Professional Partnerships
A panel presentation of three Family-to-Family Health Information Centers and Family Voices State Affiliate Organizations highlighting examples from their successful partnerships on non-CSHCN initiatives. Register here.

Beyond Policy: Implementing Care Coordination in Practice
Monday, March 30
10-11 a.m. Pacific Time
First of a three-part series focusing on implementation and evaluation of pediatric care coordination. Faculty will provide examples of successful care coordination and highlight outcomes for patients and families. Read more and register.



Reducing Inequities in Insurance Coverage and Health Care Financing for CSHCN
The Catalyst Center, which focuses on improving financing of care for children with special health care needs, has published a brief that discusses strategies that family leadership organizations around the country employ to address barriers to coverage and care among vulnerable CSHCN populations. Read the brief (PDF).



Learn the Signs. Act Early.
Children should reach milestones between birth and age 5 in how they play, learn, speak, act and move. The Centers for Disease Control and Prevention has created a monitoring resource for families and care providers, including information about specific concerns such as autism. Read more.

Other useful resources:
  • Family Support: Tell Us What We Need to Know! Family Support Research & Training Center hosts an online dialogue in English and Spanish to help identify what family support researchers should focus on in the next several years. See FSNeedtoKnow.ideascale.com or afdiganos.ideascale.com.
  • California Quality Collaborative and the Centre for Collaboration, Motivation and Innovation offer motivational interviewing (MI) training for patient-facing staff at no charge. Find out more and apply.


Let us know what's happening with your organization or family. E-mail Newsletter Editor Eileen Walsh at Eileen.Walsh@lpfch.org with your news or updates.