A newsletter to inform advocates for CSHCN about current issues and upcoming opportunities to express their opinions to policymakers and program administrators.
CALIFORNIA CHILDREN'S SERVICESNew Document Offers Guidance on CCS Redesign
The Children's Regional Integrated Service System (CRISS) has just released Principles of Health Care Delivery to Children and Youth with Special Health Care Needs. The report discusses elements that must be retained in any redesign of the California Children's Services program, suggests new elements that would enhance the system, and offers principles that should guide the redesign. CRISS brings together stakeholders in 27 counties in Northern California to improve service delivery and coordination of care for children with special health care needs. Feedback on the document is welcome. Send comments to Laurie Soman.
Read the report (PDF).
Also see: Key Components of a System for Publicly Financed Care of CSHCN in California
Upcoming CCS Redesign Meetings
CALIFORNIA POLICYBill Seeks Restroom Changing Stations for Adults
A bill (AB 662) requiring commercial places of amusement to install and maintain at least one adult changing station for persons with a physical disability is under consideration. See: East Bay Mom Hopes Her Bill Will Improve Access for Her Wheelchair-Bound Sons.
Lanterman Coalition Video Urges 10 Percent Increase for Developmental Services
The Lanterman Coalition, which comprises 19 organizations involved with California's developmental services system, has released a video in support of its long-sought 10 percent across-the-board budget increase for Regional Centers and community providers. The video, Keep the Promise, features civil rights leader Dolores Huerta. The Coalition is encouraging advocates to contact their legislators while the state budget is undergoing its May revision.
Key Upcoming Meetings
TRANSITION TO ADULT CARE
NATIONAL POLICYCongress Considering Federal Standards for Restraint, Seclusion of Students
The Keeping All Students Safe Act (HR 927), a bill that would impose minimum federal standards on restraint, seclusion and aversive intervention for students, is making its way through Congress. The issue is of particular significance for children with special health care needs who are disproportionately subject to restraint. Standards vary widely by state.
Also see: Little Oversight of Restraint Practices in Special Education in California
WEBINARSPhysical Activity Is for Everybody
Monday, May 18
10 a.m. to 11 a.m. Pacific Time
Association of University Centers on Disability; National Center on Health, Physical Activity, and Disability; and Special Olympics
Parenting a Child with Special Needs: How Internet Technology Can Help Build Your Network of Support and Knowledge
Monday, May 18
3 p.m. to 4:30 p.m. Pacific Time
Center on Technology and Disability
Playing Nicely Together: Family-Centered Practices to Help Practitioners and Families Work Together
Tuesday, May 19
11:30 a.m. to 12:45 p.m. Pacific Time
Center for Appropriate Dispute Resolution in Special Education (CADRE)
Self-Determination: A Way to Give Regional Center Clients More Choice over the Services They Receive
Thursday, May 28
10 a.m. Pacific Time
Children's Hospital of Los Angeles, USC University Center for Excellence in Developmental Disabilities
See the flyer (PDF) and register by 5 p.m. May 27.
Webinar Series: Pediatric Care Coordination: Beyond Policy, Practice, and Implementation
Three-Part Series – Third Segment, May 28
9 a.m. to 10 a.m. Pacific Time
Topic: Beyond Implementation: Capturing the Value of Care Coordination
National Center for Medical Home Implementation
Read more and register.
IN THE NEWS
EVENTSHealth Services in Schools: From Cost-Effectiveness Studies to Distributional Justice
Friday, May 29
9 a.m. to 4 p.m.
Stanford University, Levinthal Hall
Hosted by Division of General Pediatrics and sponsored by Stanford McCoy Family Center for Ethics in Society and Stanford Humanities Center
Experts share common challenges and themes in providing health care for children in schools. Presentation by Foundation grantee Dr. Dian Baker, pediatric nurse practitioner, professor at Sacramento State University and co-author of a recent study of school nursing care for children with special health care needs in California.
Registration required. Free.
WE'D LIKE TO HEAR FROM YOU
Let us know what's happening with your organization or family. E-mail Newsletter Editor Eileen Walsh at Eileen.Walsh@lpfch.org with your news or updates.