A newsletter to inform advocates for CSHCN about current issues and upcoming opportunities to express their opinions to policymakers and program administrators.
TODAY—STATE BUDGET: California Health and Human Services Secretary Diana S. Dooley and Department Directors will hold a stakeholder conference call today, Thursday, May 14, at 1 p.m. to discuss Governor Edmund G. Brown Jr.'s 2015-2016 May Revise Budget Proposal (PDF), released this morning.
Call-in number: 888-658-8648
Passcode: 4071494
Note: Join the call at least 5 minutes early to allow time for registration.


New Document Offers Guidance on CCS Redesign
The Children's Regional Integrated Service System (CRISS) has just released Principles of Health Care Delivery to Children and Youth with Special Health Care Needs. The report discusses elements that must be retained in any redesign of the California Children's Services program, suggests new elements that would enhance the system, and offers principles that should guide the redesign. CRISS brings together stakeholders in 27 counties in Northern California to improve service delivery and coordination of care for children with special health care needs. Feedback on the document is welcome. Send comments to Laurie Soman.
Read the report (PDF).

Also see: Key Components of a System for Publicly Financed Care of CSHCN in California

Upcoming CCS Redesign Meetings
  • May 18: Webinar #2 for workgroup on Eligibility/Health Conditions. Learn more and register.
  • May 29: Fourth Redesign Stakeholder Advisory Board (RSAB) meeting. Sacramento Convention Center. Check the redesign website for time and agenda.


  A Look at How California Funds Children's Health Services
As the "May revise" of the state budget gets under way, the California Budget and Policy Center has released a report on the size and scope of the state's public health care coverage and programs for children. The study, funded by the Lucile Packard Foundation for Children's Health, also notes key opportunities and challenges the state faces in promoting children's health. A companion piece provides a timeline of major policy choices made in the past several years that have shaped the state's health system for children. Read the report.

Also see: Mercury News Editorial: California Must Raise Medi-Cal Reimbursement Rates



Bill Seeks Restroom Changing Stations for Adults
A bill (AB 662) requiring commercial places of amusement to install and maintain at least one adult changing station for persons with a physical disability is under consideration. See: East Bay Mom Hopes Her Bill Will Improve Access for Her Wheelchair-Bound Sons.

Lanterman Coalition Video Urges 10 Percent Increase for Developmental Services
The Lanterman Coalition, which comprises 19 organizations involved with California's developmental services system, has released a video in support of its long-sought 10 percent across-the-board budget increase for Regional Centers and community providers. The video, Keep the Promise, features civil rights leader Dolores Huerta. The Coalition is encouraging advocates to contact their legislators while the state budget is undergoing its May revision.

Key Upcoming Meetings
  • May 20: Department of Health Care Services Stakeholder Advisory Committee
    9:30 a.m. to 3 p.m. Sacramento Convention Center. 1400 J Street.
    Listen-only number: 866-581-6591. Participant code: 2791273. Read more.
  • May 20: Medi-Cal Children's Health Advisory Panel Pediatric Dashboard Webinar
    3:30 p.m. to 4:30 p.m. The Advisory Panel is working with the Department of Health Care Services to create a dashboard as part of the Department's efforts to strengthen public reporting practices and improve transparency and accountability. Read more.
    Register for the webinar.
  • May 22: Medi-Cal Children's Health Advisory Panel
    1 p.m. to 4 p.m. Department of Health Care Services. 1500 Capitol Avenue.
    Call-in number: 866-704-1470. Participant code: 3856049. See the agenda (PDF).
  • May 22: Autism Stakeholder Meeting
    Webinar only. 9:30 a.m. to 11:30 a.m. See webpage for details.


Coding and Reimbursement Tip Sheet
To support transition of adolescents to adult care, Got Transition and the American Academy of Pediatrics have developed a summary of alternative payment methodologies and a listing of transition-related payment codes. Read the tip sheet (PDF).


Congress Considering Federal Standards for Restraint, Seclusion of Students
The Keeping All Students Safe Act (HR 927), a bill that would impose minimum federal standards on restraint, seclusion and aversive intervention for students, is making its way through Congress. The issue is of particular significance for children with special health care needs who are disproportionately subject to restraint. Standards vary widely by state.

Also see: Little Oversight of Restraint Practices in Special Education in California





Physical Activity Is for Everybody
Monday, May 18
10 a.m. to 11 a.m. Pacific Time
Association of University Centers on Disability; National Center on Health, Physical Activity, and Disability; and Special Olympics

Parenting a Child with Special Needs: How Internet Technology Can Help Build Your Network of Support and Knowledge
Monday, May 18
3 p.m. to 4:30 p.m. Pacific Time
Center on Technology and Disability
Learn more.

Playing Nicely Together: Family-Centered Practices to Help Practitioners and Families Work Together
Tuesday, May 19
11:30 a.m. to 12:45 p.m. Pacific Time
Center for Appropriate Dispute Resolution in Special Education (CADRE)
Read more.

Self-Determination: A Way to Give Regional Center Clients More Choice over the Services They Receive
Thursday, May 28
10 a.m. Pacific Time
Children's Hospital of Los Angeles, USC University Center for Excellence in Developmental Disabilities
See the flyer (PDF) and register by 5 p.m. May 27.

Webinar Series: Pediatric Care Coordination: Beyond Policy, Practice, and Implementation
Three-Part Series – Third Segment, May 28
9 a.m. to 10 a.m. Pacific Time
Topic: Beyond Implementation: Capturing the Value of Care Coordination
National Center for Medical Home Implementation
Read more and register.





Health Services in Schools: From Cost-Effectiveness Studies to Distributional Justice
Friday, May 29
9 a.m. to 4 p.m.
Stanford University, Levinthal Hall
Hosted by Division of General Pediatrics and sponsored by Stanford McCoy Family Center for Ethics in Society and Stanford Humanities Center
Experts share common challenges and themes in providing health care for children in schools. Presentation by Foundation grantee Dr. Dian Baker, pediatric nurse practitioner, professor at Sacramento State University and co-author of a recent study of school nursing care for children with special health care needs in California.
Registration required. Free.

Let us know what's happening with your organization or family. E-mail Newsletter Editor Eileen Walsh at Eileen.Walsh@lpfch.org with your news or updates.