A newsletter to inform advocates for CSHCN about current issues and upcoming opportunities to express their opinions to policymakers and program administrators.
Please forward the newsletter and encourage your colleagues and constituents to join the Network.


Stakeholders Scrutinize State Plan for CCS Redesign; Comments Accepted Until July 3
Stakeholders delved into the details of the Department of Health Care Services (DHCS) proposed plan (PDF) to redesign the California Children's Services program at a daylong meeting with DHCS officials on June 22, raising numerous issues and questions they would like to see addressed. Materials from the meeting are online, including an implementation timeline (see Slide 17 of the PowerPoint). DHCS staff said that a recording of the meeting will be posted on the state's website and on the UCLA redesign website. The next meeting of the Redesign Stakeholder Advisory Board (RSAB) is set for July 17 in Sacramento. After that meeting the RSAB will be transitioned into an ongoing CCS Advisory Group (PDF).

Comments on the plan must be submitted by July 3 to allow time for inclusion in the July 17 discussion:  


Project Leadership: Family Members Learn to Be Policy Advocates
The experiences of family members who deal with the system of care on a regular basis could contribute greatly to creating family-friendly, effective laws and policies regarding children with special health care needs. However, many individuals lack the training and confidence to make their voices heard. A new report describes how Project Leadership, a program of Family Voices of California, provides training and ongoing mentoring to create a cadre of leaders ready to engage in public policy advocacy. In the first two years of the program, which is funded by the Lucile Packard Foundation for Children's Health, 79 family members completed the training and began to advocate. Read more.



$10,000 Private Grant Supports Local Care Coordination
EPU Children's Center, which manages the California Community Care Coordination Collaborative (5Cs) project in Fresno County, has received a $10,000 grant from Masonic Lodge 247 in Fresno to support its interagency care coordination activities and centralized telephone referral system, One Call for Kids. The 5Cs, which is funded by the Lucile Packard Foundation for Children's Health, is composed of 10 county coalitions around the state and is dedicated to improving local systems of care coordination for children and families. Read more.



Audit Criticizes State Oversight of Medi-Cal Managed Care Plans
A new report from the California State Auditor calls for the Department of Health Care Services (DHCS) to make major changes to its oversight of the state's Medi-Cal managed care plans to ensure better patient access to care. The audit found that DHCS did not verify whether plans had adequate provider networks, that provider directories were not accurate, and that thousands of calls to the ombudsman's office went unanswered, among other serious issues. Read the report.

See also: Gov. Brown Questions Sustainability of Health Care Spending, Calls for Special Session

Coming Up:
Medi-Cal Children's Health Advisory Panel Meeting
Thursday, July 16
1 p.m. to 4 p.m.
1500 Capitol Avenue, Training Room B & C, Sacramento



Game Changer: Understanding Proposed Federal Changes to Medicaid Managed Care
The federal Centers for Medicare & Medicaid Services (CMS) has proposed sweeping changes to the rules that govern Medicaid (Medi-Cal in California) and the Children's Health Insurance Program. Comments on the proposal are due by July 27. A new article in Health Affairs explains the significance of the proposed changes for managed care, which is becoming the dominant structure through which health care is delivered. Read more. See proposed rule and comment.



$9 Million to Fund Autism Database
The Hartwell Foundation has made a $9 million grant to establish an autism database at Stanford School of Medicine. The project is intended to create the largest-ever collaborative, open-access centralized repository of bioinformatic data on autism. Read more.



New Spanish-Language Website for Families/Nuevo Sitio Web en Español para las Familias
The National Institute of Child Health and Human Development (NICHD) has launched a new Spanish-language website that offers information for families about various childhood conditions and details about clinical trials. The NICHD studies health processes throughout the lifespan; examines the impact of disability and disease on individuals; and sponsors training programs for health care providers and researchers.
Más información en español
More information in English

Other useful resources:  


Integrating Behavioral Health into Pediatric Primary Care
Thursday, July 2
12 p.m. to 1 p.m. Pacific Time
Sponsored by the Center for Care Innovations and the UCSF Center for Excellence in Primary Care
Read more and register.

Vaccination and Vaccine-Preventable Childhood Disease: Data and Trends
Wednesday, July 8
10 a.m. to 11 a.m. Pacific Time
Co-hosted by the Population Reference Bureau and the Lucile Packard Foundation for Children's Health
Trends in vaccination and vaccine-preventable childhood disease and the policy implications of these trends.
Read more and register.



Let us know what's happening with your organization or family. E-mail Newsletter Editor Eileen Walsh at Eileen.Walsh@lpfch.org with your news or updates.