Posted on September 30, 2015

A newsletter to inform advocates for CSHCN about current issues and upcoming opportunities to express their opinions to policymakers and program administrators.

Please forward the newsletter and encourage your colleagues and constituents to join the Network.


Upcoming CCS Redesign Meetings

  • The first webinar for the CCS Technical Workgroup on Care Coordination, Medical Home, and Provider Access is scheduled for October 9 from 1:30 p.m. to 3 p.m. (previously planned for October 1). The agenda and other meeting materials will be available on the California Children's Services (CCS) Advisory Group website.
    Register to attend the webinar.
  • The full CCS Advisory Group will meet October 21 from 10 a.m. to 4 p.m. in Sacramento. A call-in number (listen-only) will be available. For meeting agenda and additional materials including the Department's proposed Whole Child Model (PDF), check the Advisory Group website.
    Email the CCS Redesign Team for more information.

No Action on Bill to Delay CCS Transition to Managed Care
AB 187 (Bonta), the bill to extend the carve-out of California Children's Services (CCS) from Medi-Cal managed care until January 2017, remains on Governor Brown's desk.


Meet the Mom Whose Bill Awaits Gov. Brown's SignatureRosillo
Alisa Rosillo has two teenage sons who use wheelchairs, but she hasn't let these challenges slow her family down. In 2007, the Concord, CA, mom helped pass a state law to curb the abuse of disabled parking spots. Now her second bill, to install large changing tables in public facilities, is sitting on the Governor's desk. Read more.


New Foundation WebsiteNew Foundation Website
The Lucile Packard Foundation for Children's Health has launched its new website. Visit on your laptop, smartphone or tablet for information on the Foundation's work to improve the system of care for children with special health care needs (CSHCN). Stay up to date on CSHCN news and join conversations by following the Foundation's Facebook and Twitter accounts.


October 11 Deadline for Governor's Signature
Special session bills regarding support for Medi-Cal, developmental services, and In-Home Supportive Services are pending action by the Governor. Meanwhile, he has signed various bills relevant for adults with special health care needs, including:

  • AB 918: Reduction or elimination of seclusion and behavioral restraints by health facilities
  • SB 644: Civil service employment for individuals with developmental disabilities
  • AB 683: Establishment of a Voting Accessibility Advisory Committee


Barriers to Care for Foster Children's Mental, Physical Health Issues
Up to 80% of children enter foster care with at least one untreated medical condition, often as a result of past trauma. However, children and youth in the foster care system face many barriers to accessing appropriate physical, mental, and educational services. A report (PDF) from the American Academy of Pediatrics calls on pediatricians to serve as advocates for care coordination and medical homes for foster children. Read more.

The Patient-Centered Medical Home and Costs for Primary Care
A new study delves into the time, effort, and financial investment it takes to adhere to the patient-centered medical home model. This research shows that the investment may not increase revenues for primary care providers, though prior evidence suggests it improves patient care and can lead to cost savings for the community health system. The study, published this month in the Annals of Family Medicine, investigates the personnel costs of sustaining this model for primary care practices in two states. See commentary about the study for additional recommendations.

Also see: The Missing Piece: Medical Homes for California's Children with Medical Complexity



Supporting Young Children's Behavior: The Hourglass Model
Tuesday, October 13
12 p.m. to 1 p.m. Pacific Time
Sponsored by the Infant Development Association and the California MAP to Inclusion and Belonging
Attendees will learn about the Hourglass Model for guiding children to regulate their emotions and behaviors. Early childhood professionals are encouraged to attend.
Read more and register.

Promoting Health Behaviors for Persons with Disabilities
Wednesday, October 14
12 p.m. to 1 p.m. Pacific Time
Sponsored by the Association of University Centers on Disabilities
Members of the Disability Section of the American Public Health Association will present their research on topics including systems change and sex education for individuals with intellectual and/or developmental disabilities.


  • Data from the Survey of Pathways to Diagnosis and Services, specific to children with autism spectrum disorder (ASD), now are available on the Child and Adolescent Health Measurement Initiative's (CAHMI) Data Resource Center.
  • See this month's issue of NHeLP's Health Advocate: Nondiscrimination and the ACA


2015 Patient & Family Centered Care Conference
Monday, October 26
Los Angeles, CA
Sponsored by Patient & Family Centered Care Partners
The conference will offer resources and strategies for engaging patients and families to improve the quality, safety, and overall experience of health care. Health care delivery professionals and staff, patients, and family members are encouraged to attend.
Fee. Learn more and register.


Let us know what's happening with your organization or family. E-mail Program Associate Danielle DeCosta at with your news or updates. Newsletter Editor: Eileen Walsh