Posted October 15, 2015

A newsletter to inform advocates for CSHCN about current issues and upcoming opportunities to express their opinions to policymakers and program administrators.

Stay up to date on CSHCN news by following the Foundation's Facebook and Twitter accounts.


CCS Carve-Out Extended
Governor Brown has signed AB 187 (Bonta), extending the carve-out of the California Children's Services (CCS) program from Medi-Cal managed care until January 1, 2017. Read the Governor's signing message (PDF).

Advisory Group Meeting October 21
The CCS Advisory Group will meet Wednesday, October 21, from 10 a.m. to 4 p.m. in Sacramento. For meeting agenda and additional materials, check the Advisory Group website. Email the CCS Redesign Team for more information.
Call-in number (listen-only): (888) 921-8686
Passcode: 961-640-6431


Governor Brown Signs Health Bills
The bills below, of significance for children with special health care needs, now are part of California law.

AB 662: Requires installation of large changing tables in public recreation facilities
Also see: Meet the Mom Whose Bill Awaits Gov. Brown's Signature

AB 1130: Increases hours of operation for intermittent clinics, including school-based health centers

SB 484, SB 319, and SB 238: Create protections against over-prescription of psychiatric drugs for foster children
Also see: California Foster Care: New Laws Signed to Restrict Psychiatric Drugs

SB 324 and AB 449: Authorize Achieving a Better Life Experience (ABLE) savings accounts for individuals with disabilities in California

SB 276: Updates billing rules for local educational agencies (LEA) that provide services to children eligible for Medi-Cal
Also see: Big Day for Health-Related Bills

AB 564: Reduces parental fees for out-of-home care for some children with developmental disabilities
Also see: Parents of Developmentally Disabled at Regional Centers Get a Fiscal Break

ABx2-15: Authorizes "End of Life Options Act"
Also see: Right-to-Die Bill's Long Path to Law


Children Use Long-Term Care, Too
With medical advances, the number of children needing long-term care over their lifetime continues to grow, presenting ongoing challenges to families and to the system of care that provides these services. A new report, Hidden in Plain Sight: California Children Using Long-Term Care Services, places a spotlight on this population of children with severe and enduring health problems and their families—who they are, the circumstances of their lives, and the policies that affect them. The report describes how historical developments and current policies contribute to the lack of an effective system of care to manage the often complex, multi-dimensional health needs of these children and leaves families with an overwhelming burden of care. Read the report.

Also see: October's edition of Complex Child focuses on Home Care.

Webinar Series: The Road to Hospital Discharge Success for Children with Medical Complexity
Second segment – Tuesday, November 3
12 p.m. to 1:30 p.m. Pacific Time
Sponsored by the Lucile Packard Foundation for Children's Health in collaboration with Boston Children's Hospital
Panelists will lead a discussion of the Conditions of Participation for Discharge Planning established by the Centers for Medicare and Medicaid Services (CMS) and implications for providing discharge care for children with medical complexity.
Learn more about the series and register.


Quick Guide for Youth Transition
A collaborative comprised of the Department of Labor's Office of Disability Employment Policy (ODEP), Got Transition, and the Youth Transitions Collaborative, has released a Quick Guide (PDF) for young adults with chronic health problems about health and career planning as they transition to adulthood.

Also see:


Share Your Experiences, Make a Difference in Health Policy
Family Voices (National) and the American Academy of Pediatrics have partnered to identify the issues that families face in accessing and paying for health care for their children, especially those with special health care needs. Survey responses can be anonymous. Take the survey.


College Programs for Students with Intellectual Disabilities Lead to Employment Gains
More youth attending post-secondary programs for students with intellectual disabilities are leaving with paid jobs. The Think College National Coordinating Center has released a report (PDF) on outcomes for 50 such programs around the country. Read more.

Also see the archived webinar: Post-Secondary Education for People with Intellectual Disabilities


Superfest: International Disability Film Festival
The 29th annual Superfest: International Disability Film Festival comes to the Bay Area Nov. 14-15. Hosted by LightHouse for the Blind and Visually Impaired and Paul K. Longmore Institute on Disability at San Francisco State University, this year’s festival includes films from Kazakhstan, England and Slovakia. Learn more.


California streets 'home' to 11,365 youth, 2015 count reveals: now offers data from the 2015 national "Point-in-Time" homeless count, conducted in January.



Health Care for Kids Post-ACA: An Evolving Patchwork of Coverage
National Institute for Health Care Management Foundation
View the webinar recording.


Let us know what's happening with your organization or family. E-mail Program Associate Danielle DeCosta at with your news or updates. Newsletter Editor: Eileen Walsh

To see past issues, visit the Network Newsletter Archive.