Posted April 14, 2016

A newsletter to inform advocates for children with special health care needs about current issues and upcoming opportunities to express their opinions to policymakers and program administrators.

Please forward the newsletter and encourage your colleagues and constituents to join the Network.


Managed Care, Telehealth, Care Coordination Are Topics of New Foundation Grants
How children with special health care needs fare under managed care systems will be assessed by the National Academy for State Health Policy (NASHP) under a new grant awarded by the Lucile Packard Foundation for Children's Health. Other new grants from the foundation will focus on improving regular pediatric visits for children with complex conditions; exploring best practices for organizing and funding care coordination; and expanding access to telehealth. Read more about the new grants.


Advocates Offer Suggestions, Propose Changes for CCS Redesign
Two groups of advocates recently submitted detailed suggestions about the CCS redesign to the Department of Health Care Services. One group made recommendations about how the redesign should address program standards, provider network and continuity of care, family partnership, monitoring, and rates. Read their recommendations (PDF). The second group suggested changes and additions to the Department's "comparison chart" that lists services available under Medi-Cal managed care, CCS, and the proposed whole-child model. See their letter (PDF) and their edited comparison chart (PDF). Also, the CCS Redesign Advisory Group met April 6. See the website for materials and information.


Online: Recording of Senate Select Committee Hearing on Children with Special Needs
Video and audio recordings of the April 5 hearing of the Senate Select Committee on Children with Special Needs now are available on the Senate Media Archive webpage (scroll down). The hearing featured examples of local models of care coordination from around the state, and speakers from state departments discussing their efforts toward inter-agency care coordination. Find more information on the committee website.


Bills, Tax Policy Seek to Ease Financial Burden for Caregivers
Two newly introduced bills are designed to provide financial relief for family members who care for dependent relatives.

  • Senate Bill 2721 would allow individuals who provide care to earn Social Security credits for up to five years.
  • HR 4708 would allow eligible caregivers a limited tax credit for the cost of qualified long-term care expenses.

Also, the Internal Revenue Service has announced (PDF) that wages received by In-Home Supportive Services providers who live with the recipient of the services are not considered part of gross income for federal tax purposes.


Webinar: Telehealth and Autism Treatment, Training and Systems Building
Wednesday, April 20
11 a.m. to 12 p.m. Pacific Time
Sponsored by AMCHP's State Public Health Autism Resource Center
An overview of policy issues related to telehealth, and examples from organzations using telemedicine to increase access to behavioral health services.

Telehealth Summit
April 17-19
Kona Kai Resort and Spa, San Diego, CA
Read more and register. Fee.


Fact Sheets on Transition, Employment for Youth with Disabilities
As part of the national 2020 Youth Transition Plan, the Federal Partners in Transition workgroup has published two fact sheets that present resources for transition and employment:


Advocating for Equity in Education & Health Care
May 5-6
Sacramento, CA
Hosted by the California School-Based Health Alliance
Will feature more than 20 workshops on increasing health and education equity for students. Senator Richard Pan, MD, chair of the Senate Select Committee on Children with Special Needs, will be a featured speaker at the opening session on May 6.
Learn more and register. Fee.

The Promise of Local Dedicated Funds for California's Children: Progress, Potential, Politics and Policy
May 9
San Francisco, CA
Hosted by Funding the Next Generation
Sessions will cover how to pass children’s funding measures in California, the role of youth and parents in such campaigns, and implications of state policies for local revenue measures for children.
Learn more and register. Fee.

Palliative Care 8th Annual Summit Includes Pediatrics
May 12-13
Newport Beach, CA
Sponsored by the Coalition for Compassionate Care California
A special track will focus on pediatric palliative care.
Learn more and register. Fee.


Redesigning Primary Care for Those Who Need It Most
"Transforming Care," a new publication from the Commonwealth Fund, focuses on innovative models of care and payment designed to improve the system of care for patients with the greatest needs, including those with multiple chronic conditions. The first issue highlights companies that are building or redesigning primary care practices.

In brief


Medi-Cal Expansion & Health4All Kids: Tools and Resources for Communities
Wednesday, April 20
2 to 3:30 p.m. Pacific Time
Sponsored by Children Now, California Coverage & Health Initiatives, California Immigrant Policy Center, Children's Defense Fund-California, Community Health Councils, Inc., Health Access, National Health Law Program, PICO California, The Children's Partnership, United Ways of California, and Western Center on Law & Poverty
Information about upcoming Medi-Cal eligibility for all children, regardless of their immigration status.
Learn more and register.

See also: Medi-Cal Expands to Immigrant Children. Here's How It Works.

Approaches to Community Access, Participation, and Engagement for Children with Developmental Disabilities and Their Families
Wednesday, April 20
9 to 10 a.m. Pacific Time
Sponsored by the Maternal and Child Health Life Course Research Network

Moving Toward Better Patient Care via Quality Improvement Team Meetings
Thursday, April 21
11:30 a.m. to 12:30 p.m. Pacific Time
Sponsored by the National School-Based Health Alliance
Learn more and register.




Let us know what's happening with your organization or family. Email Program Associate Danielle DeCosta at with your news or updates. Newsletter Editor: Eileen Walsh