Posted July 6, 2017

News, policy updates, resources, events, and advocacy opportunities

California Children’s Services

CCS Advisory Group to Discuss Whole-Child Model
The CCS Advisory Group, which represents consumer and provider views on implementation of the CCS redesign and the whole-child model, will meet July 11. The agenda will include a report on two workshops held with the five health plans that are scheduled to provide managed care next year for some children now covered by CCS. The workshops, sponsored by the Department of Health Care Services with support from the Lucile Packard Foundation for Children’s Health, featured discussions of complex care clinics and establishing family advisory committees. Participants included family representatives, state officials, care providers with expertise in the two topic areas, and health plan representatives. The Advisory Group’s full agenda and meeting materials will be posted on the website.

Tuesday, July 11
10 a.m. to 3 p.m. Pacific Time
1700 K Street, Sacramento - First Floor Conference Room
Dial-in: (888) 989-6488; Passcode (listen only): 1945234

National Policy

Senate Expected to Resume Action on Health Care Bill; Opponents Urge Immediate Calls
Advocates continue to press for rejection of the Senate’s proposed health care bill, which could have devastating effects on care that children with complex conditions receive under Medicaid and the Affordable Care Act. Senators are expected to take up the bill again when they return from recess on July 10. Find information on how to contact your senators, along with suggested talking points (PDF). 

Also see:

California Policy

Department of Health Care Services Stakeholder Advisory Committee to Meet
Wednesday, July 19
10 a.m. to 12 p.m. Pacific Time
Webinar only
The committee provides the Department feedback on Section 1115 waiver implementation and other relevant health care policy issues.
Webinar registration, the agenda, and materials, will be available on the website

Care Coordination

Webinar Recording Available on Tool to Measure Family Experience of Care Integration
The Pediatric Integrated Care Survey (PICS), a validated instrument from Boston Children’s Hospital that assesses family experience of care integration, was introduced at a June 15 webinar. The family perception of care integration is essential in identifying opportunities to improve care coordination and care management. The webinar provided an overview of the tool, and highlighted how one hospital is using it to make improvements. See the recording and presentation slides and the speakers’ responses to questions. 

Children with Medical Complexity

Strategies to Reduce Hospitalizations and Emergency Visits for Children with Medical Complexities
The Children's Hospital Association partners with 10 hospitals around the country on the CARE (Coordinating All Resources Effectively) program, aimed at improving outcomes and reducing costs of care for children with complex medical conditions enrolled in Medicaid. This update highlights the work of Wolfson Children’s Hospital in Florida, and offers advice on how hospitals can improve or begin a program for medically complex patients. 

California Community Care Coordination Collaborative

A Step Forward: San Joaquin Coalition Prompts Action on Transportation to Medical Appointments
When the San Joaquin County branch of the California Community Care Coordination Collaborative (5Cs) began meeting in 2014, participants quickly realized that transportation to medical appointments was a major challenge for families of children with complex conditions in their county. With no local children’s hospital, families must travel outside the county for inpatient care, and frequently must attend appointments with specialists, typically in the Bay Area.

Although California Children’s Services and Medi-Cal may cover the costs of this travel, there were no services available to provide the transportation. The 5Cs coalition brought the issue to the San Joaquin Council of Governments (SJCOG). After more than a year of discussion, the SJCOG established non-emergency medical transportation as an unmet need in San Joaquin County, and has allocated $250,000 to conduct a transportation needs assessment and develop creative solutions to meet those needs. For more information about how the coalition made its case, write to Armando Valerio, avalerio [at]

Transition to Adult Care

Resource for Practices: Patient-Centered Medical Home and Got Transition's Six Core Elements
Got Transition has developed a new tip sheet (PDF) to assist practices that are looking for resources to obtain certification on transition from the National Committee on Quality Assurance Patient-Centered Medical Home. Got Transition's goal is to improve transition from pediatric to adult health care through the use of new and innovative strategies for health professionals and youth and families.



Breaking Barriers, Developing Possibilities: Bridging Pathways to Quality Healthcare for People With Special Needs (ID/DD) – A Multidisciplinary Conference for Healthcare Professionals
Saturday, August 12
9 a.m. to 5 p.m. Pacific Time
Sponsors: San Gabriel/Pomona Regional Center in collaboration with USC, University Center For Excellence In Developmental Disabilities
Continuing Education Units will be available for dental professionals, LCSWs, LMFTs, nurses, physicians & psychologists. Fee. 
Read more and register (PDF).


Supporting Title V and Medicaid Collaboration in Pediatric Medical Home Implementation
Thursday, July 20
11 a.m. to 12 p.m. Pacific Time
Sponsors: National Center for Medical Home Implementation, National Academy for State Health Policy, and the Catalyst Center
This webinar will provide strategies and promising practices to enhance collaboration on pediatric medical home initiatives between Title V programs for children and youth with special health care needs and Medicaid agencies.
Read more and register.

Archived Webinar

In this June 6 webinar, “Engaging Community in Care Coordination: Two Children's Hospital Association Member Experiences," two hospitals shared the steps they've taken to engage the community and improve patient and population health outcomes. Also see the presentation slides (PDF) and FAQ (PDF).

In the News

We'd like to hear from you

Let us know what's happening with your organization or family. Email newsletter editor Eileen Walsh at eileen.walsh [at] with your news or updates.