Whether it’s facing the shock of a first diagnosis or responding to the many challenges along the way, parents of children with special health care needs often find that their most highly valued source of support is an experienced and knowledgeable parent who has navigated the same path. But where to find such a parent? Family-to-Family Health Information Centers may provide the answer.
Join us for a lively discussion on the article Ethical Framework for Risk Stratification and Mitigation Programs for Children with Medical Complexity. The lead author and experts in the field will review what government and private health plans are doing and could do to promote optimal health, development, and family functioning for children with medical complexity.
Sufficient access to services for children with medical complexity varies considerably by state, geographic region, and payer. Families, advocates, and health care professionals need to understand children’s rights. Policymakers and payers must help support reliable and appropriate coverage and benefits. Learn how medical-legal partnerships and other forms of advocacy can protect the rights of children and support families in an era of cost containment.
Join us for a lively discussion on the article Protecting Rights of Children with Medical Complexity in an Era of Spending Reduction. The lead author and experts in the field will review what government and private health plans are doing and could do to promote optimal health, development, and family functioning for children with medical complexity.
While self-management support has been a component of adult chronic care for decades, it is just emerging as a critical need for children, especially those with complex conditions. Self-management is a shared undertaking between the child, their parents and care providers, and must take into account the child’s developmental status and the family’s capacities. Clinicians need routine, standardized approaches and tools to address the unique needs of children and their families including assessing self-management skills, collaboratively setting goals, and promoting competence and autonomy in youth.