The health care delivery system in California is challenging for families of children with special health care needs. The Lucile Packard Foundation for Children's Health sponsors a statewide group, the California Advocacy Network for Children with Special Health Care Needs, to press for improved programs and policies that will better support families.
A new survey identifies key issues that members say the Network and the Foundation should address, notably care coordination, family-centered care and finance reform. Survey respondents also ranked specific activities the Network could undertake, including dissemination of best practice information and sponsorship of regional meetings to tackle local problems. These recommendations will be incorporated into the ongoing efforts of the Network and the Foundation.
The Network is open to anyone interested in improving the system for children and their families. Members include families, care providers, county health employees, teachers, policymakers, and more.
We hope you will join the Network and add your voice.