Elaine Korry's recent public radio story on how health reform will affect chronically ill children in California is a must-listen for families of children with special health care needs and their advocates.
A key point of uncertainty for families of chronically ill kids is how insurance companies will or won't pay for "habilitative services" in the future – something the Affordable Care Act is is silent on, Korry reports.
As the story explains:
Children with conditions like asthma, Down syndrome and diabetes need all sorts of support services to thrive, not just survive. But many of these services are not strictly medical. And as the Affordable Care Act takes shape in California – embracing hundreds of thousands of children with special needs -- the insurance industry is bracing for a battle.
Much of the uncertainty turns on how insurance companies and regulators interpret legislation passed last year by California state lawmakers that defines what "habilitative services" are – and what they aren't. For example, habilitative services include physical therapy but not respite care or vocational training.
Korry reported the story for San Francisco public radio station KQED with financial support from the Lucile Packard Foundation for Children's Health.