At an April 18, 2013, legislative briefing, California state lawmakers heard about the challenges faced by children with special health care needs, from both national policy experts and family members. Seven experts -- representing families, health care providers, researchers and insurers – discussed the strengths and shortcomings of the current system and reviewed a series of policy recommendations designed to improve the system.
An estimated one million California children and teens have a special health care need, and many of these children require multiple services from the state’s health care system. But compared to children in other states, California’s children with special health care needs receive care that is less coordinated, less family-centered, and fails to meet many of the key quality indicators prescribed by the Federal Maternal and Child Health Bureau.
The briefing was sponsored by California State Assemblyman Dr. Richard Pan, who chairs the assembly’s health committee, and the Lucile Packard Foundation for Children’s Health.
A recent in-depth study commissioned by the foundation, Children with Special Health Care Needs in California: A Profile of Key Issues, provides important background information.
For more information, contact Janis Connallon, manager of the California Advocacy Network for Children with Special Health Care Needs, at (650) 498-7820 or Janis.Connallon@lpfch.org. For media inquiries, contact Barbara Feder Ostrov, communications officer, at (650) 721-6044 or Barbara.FederOstrov@lpfch.org.