In April 2014, readers of the newsletter of the California Advocacy Network for Children with Special Health Care Needs were asked to complete a short survey about the newsletter’s content, format and frequency. More than 100 readers responded. The results overall were quite positive, indicating that the newsletter helps fill an important niche for those interested in this population of children and their families. Respondents’ suggestions will help shape future content.
Asked to identify their primary role in the system of care for children with special health care needs, readers’ responses ranged widely among family members, care providers, nonprofit employees, state and county officials, researchers, insurers and others. Many respondents suggested ideas for future topics to cover, including more information about how to strengthen parent advocacy and more analysis of the system of care, including the future of California Children’s Services, and other policy issues.
Responses to several key questions:
How Often Do You Read the Newsletter?
More than half of respondents (53%) reported reading every issue, and another third (34%) said they usually read it.
How Helpful Are the Following Sections of the Newsletter for You?
California Policy topped the list, followed closely by National Policy, Resources and Research.
How Would You Describe the Frequency of the Newsletter (Twice Monthly)?
79% said “just right” and 21% said “too often.”
How Would You Describe the Length of the Newsletter?
Almost all respondents (91%) said “just right.”
How Would You Describe the Format of the Newsletter (paragraph summaries)?
94% responded “just right.”
How Much of the Information Presented in the Newsletter Are You Seeing for the First Time?
61% said that “all” of “most” of the information is new, and another third (35%) said “half.”
How Much Do You Rely on the Newsletter to Keep You Up to Date about CSHCN?
68% of respondents said they “always” or “usually” rely on the newsletter, and another 26% said sometimes.
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