Helping families coordinate care for their children with special health care needs is the focus of two grants awarded June 5 by the Lucile Packard Foundation for Children’s Health. A third grant is designed to increase families’ role in policymaking for state and county programs that serve these children.
“Few things are more frustrating for families than trying to juggle the multiple services their child with a special need may require – medical appointments, therapy, special education, day care, transportation and more,” said Edward Schor, MD, senior vice president at the foundation. “Coordinating among numerous agencies adds to the burden. These grants will explore possible funding sources for care coordination, and will support community coalitions around the state that are developing local systems of care coordination tailored to their local needs.”
Through its grantmaking program, the foundation focuses on improving the health care system for the state’s estimated 1.4 million children who have one or more special health care needs. Grants totaling $380,000 went to three organizations. The grants will fund:
* The first comprehensive review of options for financing and reimbursing for care coordination for children with special health care needs, including recommendations to reduce perceived barriers in payment for essential service that these children receive.
* Engagement of up to three current grantees to continue the work of their coalitions in developing local systems of care coordination for children with special health care needs, and support for up to three new communities wanting to develop local systems; selected grantees will participate in a multi-community learning collaborative to improve systems of care coordination.
* A benchmark study of the ways families currently participate in the development of policy and operation of public health programs in states and California counties serving children, especially children with special health care needs.
For more detailed information on the grantees and their projects, click here.