As 10-year-old Sarah Murnaghan lies in bed at a Pennsylvania hospital waiting for a lung transplant, an intense national debate over child organ transplants is taking place over her case.
Insurance plans often do not pay for hearing aids, physical therapy or similar services they define as “habilitative” rather than rehabilitative. A new issue brief looks at how habilitative services may be covered under the Affordable Care Act, a critical issue for children with special health care needs and their families.
Yvette Baptiste, executive director of the Eastern Los Angeles Family Resource Center, wants to help parents avoid some of the frustrations she faced with her own children with special health care needs.
One family discusses the joys and stresses of rearing a special needs child, and suggests that life would be better for them if care were better coordinated.
The idea of a medical home was conceived by the American Academy of Pediatrics as a way to assure that children, particularly those with special health care needs, are able to obtain high quality care in a fragmented care system.
In a new Issue Brief the authors combine the medical home and Triple Aim approaches and outline a “Triple Aim Medical Home” as a way to improve the care of children with special health care needs, while improving the system of care for all children and lowering health care costs.
At an April 18, California state lawmakers learned firsthand about the challenges faced by children with special health care needs, from both national policy experts and family members.
We commissioned a policy note from the UCLA Center for Health Policy Research that explores disparities in access to pediatric subspecialty care in California.
An April 18 legislative briefing will help California policymakers understand the challenges faced by children with special health care needs, as well as policy solutions and other avenues for change.
As hundreds of thousands of California children are moved this year from Healthy Families to Medi-Cal coverage, some families may experience challenges in accessing or continuing medical care for their children. Here are some resources that can help.
