This morning, CNN published "An Intimate View of the 'Super Parents' of Chronically Ill Children," a story about our Foundation's photography project that documents the lives of families who have children with disabilities or chronic medical conditions.
The mother of an adult son with autism reflects on the North Miami police shooting of a therapist who was trying to help a young man with autism. Law enforcement officers must be trained to protect the entire population, she says.
What does it take to create and implement an effective, family-centered plan of care for a child with special health care needs? In this November 9 webinar, two expert speakers discussed their approaches to the process of care planning in two very different settings—Children's Hospital of Philadelphia and a small private practice in Vermont.
Improving health care for children with complex chronic conditions is the focus of two grants awarded November 1 by the Lucile Packard Foundation for Children's Health. A third grant will support development of tools to measure the impact of family engagement in policymaking for children with special health care needs.
Diane Stonecipher’s son, now 24, is blind, quadriplegic, profoundly delayed, and has been in hospice twice. Yet he doesn’t qualify for nursing care at home. Stonecipher, herself a nurse, says it’s time to train a new kind of workforce for in-home and residential care.