Whether it’s CCS, CHGME, DSH or ACA, Tim Curley follows them all. With years of experience in federal and state health policy, he keeps a close eye on the politics of paying for children’s health care, including trends in Medicaid and managed care policy that deeply affect children with special health care needs and their caregivers.
Kausha King’s work as the parent health liaison at the Care Parent Network in Contra Costa County is deeply personal. Nearly everything she teaches parents about advocating for their children with special health care needs, she has experienced herself. “It’s a world all our own, and we came into it blind and had to learn,” she says.
A project to promote the use of telehealth for children with special health care needs and another to train parents in advocacy are among grants awarded April 2 by the Lucile Packard Foundation for Children’s Health.
Health services for California students with special health care needs vary greatly by school district, are provided by a variety of school staff, operate under a confusing patchwork of regulations, and are often underfunded, according to a new study.
Karen Fessel is known throughout California for her passionate advocacy to get insurers to pay for the services families need for their children on the autism spectrum. Now, she’s branching out to serve children with other special health care needs.