Network Newsletter sent on December 14, 2017
News, policy updates, resources, events, and advocacy opportunities
Note - The next Newsletter is scheduled for publication on January 4, 2018. Our best wishes for a peaceful holiday.
California Children's Services
Preparing for the Move to Managed Care
The Department of Health Care Services has posted a new document related to California's scheduled plan to move children in 21 counties from CCS coverage to Medi-Cal managed care, beginning in 2018. The document is a template for a memorandum of understanding (MOU) that will be developed between each managed care plan and the relevant CCS program. The MOU will provide details on which entity will be responsible for various activities such as eligibility and enrollment, case management, continuity of care, family engagement, and more. See the template (PDF). For details on the transition, see the state's Whole-Child Model website.
The CCS Advisory Group, which offers guidance to the Department of Health Care Services, is scheduled to meet in January.
California Children's Services Advisory Group
Wednesday, January 10
10 a.m. to 3 p.m. Pacific Time
1700 K Street, Sacramento – First Floor Conference Room
Dial In: (888) 989-6488; Passcode (listen only): 1945234
Details: Public comment is accepted at the end of the meeting. Agenda and materials will be posted on the Advisory Group website. As a reminder, these are the Advisory Group members (PDF) as of April.
Summary: Family Voices Leadership Conference
Family leaders and family organizations from every state, D.C., and some U.S. territories gathered in November to discuss how to strengthen their collective impact on systems serving children and youth with special health care needs. See information and slides from the various sessions, which touched on multiple topics, including system change, supporting diverse family leaders, and youth leadership development.
Mental and Behavioral Health
Improving Mental Health Services for CSHCN
The National Health Law Program (NHeLP) released a report in August focused on ways to improve access to mental health services for children with special health care needs in California. A new fact sheet summarizes the barriers to care and offers recommendations for actions the Department of Health Care Services might take. The work was supported by the Lucile Packard Foundation for Children's Health.
Also see the full report: Access to Mental Health Services for Children with Special Health Care Needs in California
Pressing for Congressional Action on Children's Health Insurance Program
Nine million children are in danger of losing coverage through CHIP, the Children's Health Insurance Program, whose funding expired September 30. Congress passed a short-term measure to extend funds for some states, but long-term funding remains elusive as states run out of money for the program. The First Focus Campaign for Children has created a letter urging Congress to act, and is seeking organizations' signatures. Read the letter. The sign-on deadline is December 15.
Congress Continues to Consider Tax Bill
As of today, a tax bill that contains provisions detrimental to CSHCN and their families is moving toward a vote next week that would send it to the president, although some senators are wavering over various elements of the bill. Advocates are urging constituents to contact their senators to urge them to vote no.
Feds Address Special Education Rights in Private Schools
The US Government Accountability Office (GAO) has issued a report recommending that Congress consider requiring states to notify parents/guardians about changes in federal special education rights when a parent moves a child from public to private school. The report also suggests that the Department of Education review and correct inaccurate information provided by states related to the Individuals with Disabilities Education Act (IDEA). Read the report.
December 15 Deadline for Health Insurance Enrollment
The option to enroll in the Health Insurance Marketplace is Friday, December 15 in most states, while California has extended its enrollment periods for renewing and new members. Be sure to check Healthcare.gov or Covered California for full information on specific deadlines.
New Data on Growing Number of Children Diagnosed with Developmental Disabilities
Between 2014 and 2016 the prevalence of children ages 3 to 17 who had ever been diagnosed with a developmental disability rose from 5.76% to 6.99%, according to the National Center for Health Statistics. Other findings indicate that prevalence was higher among boys than girls, and lower among Hispanic children compared with children in other racial and ethnic groups. Read the data brief.
- Coping Support Assists Parents of Hospitalized Children – A study published in Pediatrics reports that coping interventions can reduce anxiety and stress, but not depression, among parents of hospitalized children.
- Four Ways Children's Hospitals Are Leading Adult Hospitals – from the Children's Hospital Association
- Complex Child December issue: Caregiving
- Strengthening Medicaid Long-Term Services and Supports in an Evolving Policy Environment: A Toolkit for States – from the Center for Health Care Strategies
Early-bird Registration for AMCHP Annual Conference
Register before January 5 to receive a discount for the Association of Maternal and Child Health Programs annual conference, which will feature Brenda Fitzgerald, director of the U.S. Centers for Disease Control and Prevention, as a keynote speaker. The conference, which includes a track on children and youth with special health care needs, is scheduled for February 10-13 in Arlington, Virginia. Read more and register.
In the News
- Trump Administration Weighs in on FAPE (Free Appropriate Public Education), IEPs
Disability Scoop, 12/11/17
- I Use a Wheelchair. And Yes, I'm Your Doctor.
NY Times, 12/6/17
- U.S. FDA Proposes Drug Development Guidance for Rare Pediatric Diseases
- A Place to Play, on Wheels or Feet
NY Times, 12/5/17
- NICU Admissions Not Associated with Level of Illness Acuity
- Sensory-Friendly Santa Welcomes Kids with Special Needs
Disability Scoop, 11/30/17
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