Network Newsletter sent on January 4, 2018
News, policy updates, resources, events, and advocacy opportunities
California Children's Services
CCS Advisory Group to Meet - Public Comment Welcome
Wednesday, January 10
10 a.m. to 1:15 p.m. Pacific Time
1700 K Street, Sacramento – First Floor Conference Room
Dial In: (888) 989-6488; Passcode (listen only): 1945234
Details: Public comment on the Whole-Child Model and the transfer of some CCS children to Medi-Cal Managed Care will be accepted at the end of the meeting. For those unable to attend, comments may be submitted by Monday, January 8, to CCSRedesign@dhcs.ca.gov. All submitted comments will be read during the public comment portion of the meeting. The meeting agenda and materials will be posted on the Advisory Group website.
Archived Webinar: Leveraging Medicaid Quality Metrics to Improve Care for Children with Chronic and Complex Health Care Needs
As health reform efforts expand and children's health quality measurement efforts become more advanced, federal and state interest in quality improvement for children with chronic and complex health care needs is increasing. See a recording and slides from a November webinar that examines the current landscape, challenges, and key strategies for states conducting quality measurement for these children. The webinar also highlights New York's approach to using quality metrics to improve care and outcomes. The webinar was sponsored by the National Academy for State Health Policy and supported by the Lucile Packard Foundation for Children's Health.
Also see a related blog: States Drive Innovations in Quality Measurement and Improvement for Children with Special Health Care Needs (PDF).
How do pediatricians view treating children with special health care needs? What are the best ways to engage families in policymaking? How can policymakers improve mental health services for children? What are the key elements in developing a care plan? These were among topics covered by grantee reports and webinars sponsored by the Lucile Packard Foundation for Children's Health in 2017. Take a look back:
- Challenges and Joys: Pediatricians Reflect on Caring for Children with Special Health Care Needs and Survey: Quantifying Pediatricians' Views on Caring for Children with Special Health Care Needs
- Assuring Equitable Funding of Services for Children with Developmental Disabilities
- Standards for Systems of Care for Children and Youth with Special Health Care Needs, Version 2.0
- Access to Mental Health Services for Children with Special Health Care Needs in California and Recommendations to Improve Access to Mental Health Services for Children with Special Health Care Needs in California
- Engaging Families in Improving the Health Care System for Children with Special Health Care Needs
- Webinar Introduces Care Integration Measurement Tool for Families of Children with Special Health Care Needs and Q&A: New Tool for Measuring Family Experience of Care Integration
- Webinar Describes Care Planning Process for Children with Special Health Care Needs (2016) and Q&A: Care Planning for Children with Special Needs
Grant to Boost Services for CSHCN in Rural Areas
A $2 million grant to the UC Davis Department of Pediatrics will provide five years of funding for a telemedicine program to serve children with disabilities living in remote communities. The grant, from the Agency for Healthcare Research and Quality, will support the School-Based Tele-Physiatry Assistance for Rehabilitative and Therapeutic Services (STARS) program, which will install teleconferencing equipment in schools in five counties - San Joaquin, Butte, Mendocino, Lodi, and Fresno. Researchers will assess the impact of using telemedicine to serve children with special health care needs. Read more.
State Bills to Watch
AB 11 (McCarty) seeks to ensure early identification of developmental delays or disorders in children ages 0 to 3 by promoting screenings under the Early and Periodic Screening, Diagnosis, and Treatment (EPSDT) benefit in Medi-Cal. The bill is scheduled for a hearing by the Assembly Health Committee on Tuesday, January 9. Read a fact sheet about the bill (PDF).
Short-Term Fix for CHIP
In December, Congress reached a deal to avert a government shutdown, including a plan to add only $2.85 billion to the Children's Health Insurance Program (CHIP) through March 31. However, this funding won't be enough for the states that are running out of money for CHIP, and some are still sending out notices to families who may have to find new coverage.
National Bills to Watch
The Recognize, Assist, Include, Support, and Engage (RAISE) Family Caregivers Act passed the US House on December 18, and will next head to the Senate for a vote. The act would establish a coordinated strategy to support the nation's 40 million family caregivers. Read more.
- Resources for Families: Building Your Care Notebook – from the National Center for Medical Home Implementation. Tools to organize and maintain records of a child's care to ensure that care is comprehensive, coordinated, and family-centered. Examples of resources include appointment logs, medical bill tracking forms, and a list of questions to ask clinicians.
- Complex Child January issue: Heart and Cardiac Conditions
You Shouldn't Have to Be a Rocket Scientist to Access Services for Kids with Disabilities
Wednesday, January 24
12 p.m. to 1 p.m. Pacific Time
Family Voices of California
Details: Parents of children and youth with special health care needs often spend countless hours trying to understand, navigate, and access services. Speaker Sarah Taylor, MSW, PhD, will discuss research on service inequalities within educational, medical, and social service systems as well as current policies that are intended to reduce these disparities. Register.
Exploring Intersectionality and Multiple Cultural Identities with Developmental Disabilities
Registration is open for the first in the 2018 series of Learning and Reflection Forums sponsored by the Georgetown University National Center for Cultural Competence Leadership Institute. The event on Thursday, January 25, is designed to explore the concepts of intersectionality and multiple cultural identities within the context of developmental and other disabilities. Read more and register.
Family Voices CA Health Summit & Legislative Day
The Family Voices of California Health Summit & Legislative Day in February brings together families, youth, providers, policymakers, state agencies, and advocates who are eager to improve services and systems of care for children and youth with special health care needs. Hear from experts, build relationships with professionals, and learn how to address legislators to effectively implement change. Register.
In the News
- Trump Administration Proposes Rules for Health Plans without Certain ACA Protections
Washington Post, 1/4/18
- Trump Special Ed Pick Earns Senate Approval
Disability Scoop, 1/2/18
- New Children's Hospital Transforms California Healthcare
- Report: A Quarter of California's Foster Students are Chronically Absent from School
Chronicle of Social Change, 12/21/17
- Virtual Calming: Easing Anxiety in Young Patients Using Immersive Technology
Stanford Medicine, Fall 2017