Network Newsletter sent on March 15, 2018
News, policy updates, resources, events, and advocacy opportunities
California Children's Services
New Draft Documents on Whole-Child Model Transition
As 21 counties prepare for the Whole-Child Model (WCM), which moves some CCS children into Medi-Cal managed care plans, the Department of Health Care Services has released drafts of several documents that stakeholders may find of interest:
- A draft Numbered Letter that provides guidance to local county CCS programs (PDF) on their requirements under the WCM.
- A draft notice providing guidance on the WCM to all CCS-paneled providers (PDF).
- A draft letter to provide direction to Medi-Cal managed care plans (PDF) on their requirements under the WCM.
Questions about the Whole-Child Model may be sent to CCSRedesign@dhcs.ca.gov
CCS Advisory Group to Meet
Wednesday, April 4
10 a.m. to 3 p.m. Pacific Time
1700 K Street, Sacramento – First Floor Conference Room
(888) 989-6488; Passcode (listen only): 1945234
Agenda and details will be posted on the Department of Health Care Services website.
Webinar on Complexity Tiering: Recording, Slides Now Available
A February 28 online conversation featured three authors of a new report that introduces complexity tiering for children with chronic and complex conditions. The speakers described current tiering practices and uses, made recommendations for policy and research, and answered questions from the audience. View the recorded webinar and presentation slides.
Also See archived webinar: Measuring Family Experience of Care Integration to Improve Care Delivery
Report: Caring for an Individual with a Rare Disease
A new report from the National Alliance for Caregiving takes an in-depth look at the experiences and challenges of caregivers of individuals with rare diseases and conditions. The report notes that the majority of these individuals take care of a child and are immediate relatives. The report offers policy recommendations, including the need for respite care and counseling, financial support and workplace protection, training for caregivers, and more. Read Rare Disease Caregiving in America (PDF).
Spend Four Minutes – Enter to Win a Gift Card
This is the last week to complete a survey regarding the format and content of this newsletter. Please fill out the survey so we can better tailor topics to meet your needs. Then enter to win a $50 Amazon gift card. Thank you to all who have already responded – average time to complete is just four minutes. Take the survey.
Senate Subcommittee Considers In-Home Supportive Services
Various aspects of the In-Home Supportive Services (IHSS) program, which delivers personal care to many children who have disabilities, were on the agenda of a March 8 Senate budget subcommittee hearing. Topics included provider payment rates, faster provider enrollment, privacy concerns related to implementation of an electronic verification program, and possible cuts in provider hours. Watch the archived broadcast of the session (beginning at the 4:30 mark; public comment at 5:46).
- Medicaid's Role for Children with Special Health Care Needs: A Look at Eligibility, Services, and Spending – from the Kaiser Family Foundation
- How Do Medicaid/CHIP Children with Special Health Care Needs Differ from Those with Private Insurance? – from the Kaiser Family Foundation
Series Examines Implementation of Individuals with Disabilities Education Act (IDEA)
The National Council on Disability has published a five-part series on the current state of policy and practice of the Individuals with Disabilities Education Act (IDEA), along with assessment of progress or non-progress, and recommendations for improvement. Topics include underfunding of IDEA and segregation of students with disabilities. Read more.
- Complex Child Teens and Young Adults edition
- National Center for Medical Home Implementation – provides information about pediatric medical home activities, partners, and stakeholders in California.
- Amazon Offers Prime Discount for Medicaid Recipients
Rolling Up Our Sleeves: How to Plan and Implement Quality Improvement Activities Focused on Family Engagement
Thursday, March 22
12 p.m. to 1 p.m. Pacific Time
National Center for Medical Home Implementation and the Association of Maternal and Child Health Programs
This webinar will provide family leaders, pediatric clinicians, and others with tools and resources to plan a quality improvement project to engage families and enhance family-centeredness in pediatric health care. Register.
Grants Available for Quality Measurement
The Centers for Medicare & Medicaid Services (CMS) is funding initiatives to develop quality measures for the Merit-based Incentive Payment System. The focus is on specialists, including orthopedic surgery, mental health, and palliative care, rather than primary care. CMS will use the $30 million in grants to partner with physicians, patient advocacy organizations, health systems, and other stakeholders. Read more about how to apply (PDF).
In the News
- House Rejects Bill to Give Patients a 'Right to Try' Experimental Drugs
NY Times, 3/13/18
- Photos of the 2018 Winter Paralympics
The Atlantic, 3/13/18
- Early Childhood Advocates Turn to Pediatrician's Office as Key Hub for Screening Kids and Helping Parents
Center for Health Journalism, 3/2/18
- Few Parents Plan for Future of Children with Disabilities, Study Finds
Disability Scoop, 2/22/18
- A Barrier Breaks: An Actress with Down Syndrome Plays the Lead
NY Times, 2/14/18