Network Newsletter sent on May 10, 2018
News, policy updates, resources, events, and advocacy opportunities
California Children's Services
Why the Delays in Children Receiving Needed Durable Medical Equipment and Supplies?
Families and health care providers frequently report lengthy delays in obtaining essential supplies and equipment for children with special needs, sometimes with severe consequences for the child's health and development. A new report outlines the multiple administrative obstacles that contribute to these delays, and offers recommendations on how to address them. Read the full report and a fact sheet outlining its recommendations.
May 18: Webinar on CCS Transition, Whole-Child Model
Families, providers, and others interested in the upcoming transfer of children from CCS into Medi-Cal managed care may want to tune in to the Department of Health Care Services scheduled informational webinar on Friday, May 18. Speakers will explain the Whole-Child Model and provide information about who is eligible, which counties will participate in the transition, the services that will be provided for children who are transferred, and the grievance and appeals process.
Friday, May 18
1 p.m. to 2:30 p.m. Pacific Time
Details: Registration instructions and webinar information are available on the CCS Advisory Group website. Pre-registration is required.
Transition to Adult Care
Study: Hospital Readmission Data Highlight Need for Attention to CSHCN
One issue of concern as adolescents transition into adulthood is the increased likelihood of hospital readmission. Special health care needs may complicate discharge planning and follow-up care for youth, and may be especially challenging for those who are attempting more responsibility with self-management of their chronic conditions. At present, the geriatric population receives the most attention regarding policies for improving discharge and reducing readmission. However, a new retrospective analysis, the first ever to assess hospital readmissions across the age continuum, suggests that increased attention to other at-risk, vulnerable populations, such as children with special health care needs, may be necessary to optimize hospital discharge and follow-up care. Funding support was provided by the Lucile Packard Foundation for Children's Health. Read the full study.
Children with Medical Complexity
Follow-up Questions from Webinar on Complexity Tiering
So many audience questions were raised during a February 28 online conversation about risk tiering for children with medical complexity that the speakers were unable to answer all of them. Now the answers are available. View the original report, the recording and the presentation slides.
Coalition Helps Expand Non-Emergency Medical Transportation for CSHCN
Since 2013, the Lucile Packard Foundation for Children's Health has supported the California Community Care Coordination Collaborative (5Cs) to improve coordination among agencies, service providers, and organizations that serve CSHCN and their families. In partnership with the San Joaquin Regional Transit District, the 5Cs coalition in San Joaquin County recently launched Care Connection, which expands transportation options for CSHCN directly from their homes to approved health care providers in Sacramento and the greater San Francisco Bay Area. Read more about Care Connection (PDF) and the new available routes.
- #MeToo Survivors with Disabilities: We Will Not Be Forgotten – from The Arc
- Ensuring Beneficiary Health and Safety in Group Homes through State Implementation of Comprehensive Compliance Oversight (PDF) – from the US Department of Health and Human Services
- Assistive Technology for Transition Success – from the Pacer Center's National Parent Center on Transition and Employment
Representatives Sought to Advise State on Children Covered by Medi-Cal
The Department of Health Care Services is looking for candidates to fill a vacancy on the Medi-Cal Children's Health Advisory Panel. Individuals who are a parent, foster parent, relative caregiver, or legal guardian of a Medi-Cal enrollee who is 21 years of age or younger may apply. The 15-member panel provides feedback to the department on topics that affect children covered by Medi-Cal. Interested applicants should submit their Statement of Interest (PDF) and resume to MCHAP@dhcs.ca.gov by May 25.
Department of Health Care Services Stakeholder Advisory Committee to Meet
Thursday, May 17
10 a.m. to 3 p.m. Pacific Time
1414 K St, Sacramento – First Floor Conference Room
(888) 606-5935; Passcode: 9283547
Details: Agenda is posted on the committee website.
Proposal Threatens Funding for Children's Health Insurance Program
The Trump Administration is seeking to rescind $7 billion in funding for the Children's Health Insurance Program (CHIP), which earlier this year was reauthorized for 10 years. The American Academy of Pediatrics and other organizations are asking Congress to oppose the cuts. Read more.
Also See: 4 Takeaways from Trump's Plan to Rescind CHIP Funding – from Kaiser Health News
- Proposed Medicaid Access Rule Could Jeopardize Services – from Health Affairs
- Senators Call for End to Subminimum Wage Amid Accusations of Exploitation – from Disability Scoop
Concurrent Care: Pediatrics and Complex Care Plans
Tuesday, May 15
12 p.m. to 1 p.m. Pacific Time
Pennsylvania's Pediatric Palliative Care Coalition, Greater Illinois Pediatric Palliative Care Coalition, and Coalition for Compassionate Care of California
Details: Part of a 2018 Pediatric Webinar Series. Learn more and register.
The Role of Youth Leadership in Health Equity Work
Wednesday, May 16
3 p.m. to 3:30 p.m. Pacific Time
Family Voices National Center for Family Professional Partnerships
Details: Part of a series for youth self-advocates. Read more and register (PDF).
Measure What Matters: Advancing Multidisciplinary Care Coordination in Primary and Subspecialty Care Settings
Thursday, May 17
9 a.m. to 9:45 a.m. Pacific Time
National Center for Medical Home Implementation and the National Center for Care Coordination Technical Assistance
Details: Second in a two-part webinar series presenting real-world experiences from diverse health care providers with the common goal of capturing the value of care coordination using the Care Coordination Measurement Tool (PDF) and accompanying adaptation guide (PDF) from Boston Children's Hospital. Register. Recording and slides from the first segment will be available on the website.
Beyond Cost and Utilization: Rethinking Evaluation Strategies for Complex Care Programs – from the Center for Health Care Strategies
2018 National School-Based Health Care Convention
June 24 to 27
JW Marriott, Indianapolis, IN
School-Based Health Alliance
Details: Explore new ways health centers are serving their schools and their communities by promoting wellness and health equity. Read more and register.
In the News
- Caring for Tor: An Intimate Look at the Life of a Young Caregiver
- 'Things are so different now': Athletes, Supporters Celebrate 50 Years of Special Olympics
Chicago Tribune, 5/3/18
- Lack of Quality Caregivers, Constant Turnover Tough on Families
Disability Scoop, 5/2/18
- Kids with Disabilities Face a Tough Transition to Adult Care
- Students with Disabilities Suffer the Most from K-12 Funding Cuts
- Feds Release New Stats on Restraint and Seclusion in Schools
Disability Scoop, 4/24/18