Foundation Awards Grants; CCS Advisory Group Meets; Care Coordination Webinar; Foundation Names CEO

Network Newsletter sent on July 12, 2018

News, policy updates, resources, events, and advocacy opportunities

Network News

Foundation Awards Grants for Telehealth, News Coverage of Child Health

Expanding the use of telehealth services and increasing public attention to children's health are the goals of two grants recently awarded by the Lucile Packard Foundation for Children's Health. Recipients are The Children's Partnership and the California Health Report. Read more.

Grants to Focus on Transition to Adult Care, Access to Mental Health Services

The Foundation also awarded grants to two coalitions of the California Community Care Coordination Collaborative (5Cs) to improve coordination among agencies, service providers, and organizations that serve CSHCN and their families. Beginning in September, the Orange County coalition will address transition from pediatric to adult care, and the San Joaquin County coalition will address access to mental and behavioral health services. Read more about the 5Cs.

New President to Lead Foundation

Image of Cynthia Brandt StoverCynthia Brandt Stover will assume the role of president and chief executive officer of the Lucile Packard Foundation for Children's Health on September 4. Brandt Stover has been campaign director at the Smithsonian Institution since 2013, and previously held positions at Stanford University and Mills College. Read more.

California Children's Services

CCS Advisory Group Hears Update on Transition

The first eleven days of the Whole-Child Model transition have gone fairly smoothly, according to reports made at the CCS Advisory Group meeting on July 11. The Advisory Group also heard a presentation on delays in children obtaining durable medical equipment and supplies, and discussed topics that CCS might address in the future, including transition to adult care. See the meeting agenda and slides, and other background information about the Whole-Child Model. Also see an updated Frequently Asked Questions (PDF) about the transition.

Also See:

Children with Medical Complexity

Webinar: Whose Care Is It, Anyway?

Children with medical complexity have multiple chronic conditions and require an array of medical and community-based services. Care coordination is increasingly seen as essential to addressing the fragmented care that these children and their families often encounter. Join a discussion on the article Care Coordination for Children with Medical Complexity: Whose Care Is It, Anyway?. Lead author Dennis Kuo, MD, and other experts will review the article's key content and discuss why care coordination is vital to improving the system of care.

Thursday, July 26
10 a.m. to 11 a.m. Pacific Time
Deatils: Register

Also SeeA Conversation on Models of Care Delivery for Children with Medical Complexity, an earlier webinar in this series on Building Systems that Work for Children with Complex Health Care Needs 

Funding Opportunity

Challenge: Care Coordination for CSHCN

The federal Maternal and Child Health Bureau is sponsoring a competition to support the development and testing of low-cost, scalable tech innovations to meet the information needs of families and case managers involved with care coordination for children with special health care needs. The challenge will launch in August. Find out more.

Family Engagement

Webinar: Collaborating with Non-Traditional Partners to Develop Diverse Family Leaders

Thursday, July 26
10:30 a.m. to 11:30 a.m. Pacific Time 
National Center for Family-Professional Partnerships (a project of Family Voices) 
Details: Four family organizations will present their experiences collaborating with non-traditional partners to identify, recruit, train, and support family leaders representing the diversity of families in their states and communities. Register.

Caregiver Survey Documents Personal, Family, Economic Challenges

More than half of family caregivers in a recent survey reported that they had no plan for the future of their family member with disabilities, and two-thirds said that they had difficulty finding support staff to assist them with care. The results come from the 2017 Community Report of Family and Individual Needs for Disability Supports (FINDS), which surveyed 3,000+ family members nationwide who care for individuals with intellectual or other developmental disabilities. Read more about the findings.

California Policy

Department of Health Care Services Stakeholder Advisory Committee to Meet

Wednesday, July 18
10 a.m. to 3 p.m. Pacific Time 
The California Endowment
1414 K St, Sacramento – 1st Floor Conference Room
(888) 606-5935; Passcode: 9283547 
Details: Public comment will be taken throughout the meeting. The agenda includes an update on the California Children's Services Whole-Child Model. The agenda and materials are posted on the website. The webpage also includes a list of committee members, updated as of May. 

Electronic Visit Verification (EVV) stakeholder meeting

Monday, July 23
1 p.m. to 3 p.m. Pacific Time
California Department of Social Services
744 P St, Sacramento – OB 9, Room 205 (CDSS auditorium)
Details: Check the webpage for call-in information and agenda.

National Policy

In Brief



Early and Periodic Screening, Diagnostic and Treatment (EPSDT) Education for Providers and Advocates

Wednesday, July 18
10 a.m. to 11:30 a.m. Pacific Time 
American Academy of Pediatrics and Georgetown Center for Children and Families
Details: This webinar will identify EPSDT's history and structure, discuss the role of the federal government and states in the provision of this comprehensive benefit, and provide examples of services guaranteed to children covered by Medicaid. Register.

In the News

Filed in

  • News
Image of Network Newsletter

Add new comment

Filtered HTML

  • Allowed HTML tags: <a> <br> <em> <strong> <ul> <ol> <li> <p><br />
  • Web page addresses and e-mail addresses turn into links automatically.

Plain text

  • No HTML tags allowed.
  • Web page addresses and e-mail addresses turn into links automatically.
  • Lines and paragraphs break automatically.
This question is for testing whether or not you are a human visitor and to prevent automated spam submissions.

Join Us

Stay informed on children with special health care needs. Sign-up to receive our newsletter and updates from the Foundation.