Paying for Transition to Adult Care; CCS Advisory Group to Meet; Ethical Considerations in Medical Complexity Care

Network Newsletter sent on October 4, 2018

News, policy updates, resources, events, and advocacy opportunities

Transition to Adult Care

Report: Strategies to Pay for Transition Services

Failure to make the critical handoffs between pediatric and adult care providers often can result in poorer health outcomes, consumer dissatisfaction and worry, and increased emergency room and hospital costs. A major barrier to providing transition services is lack of payment incentives for either pediatric or adult providers. To address this, the National Alliance to Advance Adolescent Health, with funding from the Lucile Packard Foundation for Children’s Health, convened stakeholders to develop recommendations for pediatric-to-adult transition value-based payment (VBP) strategies and quality measures. Their findings are outlined in a new report, Recommendations for Value-Based Transition Payment for Pediatric and Adult Health Care Systems.

Express Your Views on Transition

Got Transition, a national organization focused on improving the transition process, is updating its Six Core Elements of Health Care Transition. Families, young adults, health care providers, researchers, and other stakeholders are invited to offer comments on the Six Core Elements and accompanying tools. Complete the brief survey.

California Children's Services

CCS Advisory Group to Hear Update on Whole Child Model, Discuss Transition Planning

Wednesday, October 10
10 a.m. to 1:30 p.m. Pacific Time
1700 K Street, Sacramento – First Floor Conference Room
(888) 989-6488; Passcode: 1945234 (listen only) 
Details: The agenda includes updates on the transition of children to Medi-Cal managed care; information about assistance that is available from Family Voices of California during the Whole Child Model transition; a discussion of planning for transition to adult health care; and an update on the Title V needs assessment. The agenda and meeting slides are available on the website. Public comment will be taken.

Whole Child Model Overview Webinar for Phase II Implementation

Thursday, October 18
1 p.m. to 2:30 p.m. Pacific Time
California Department of Health Care Services
Details: Speakers will provide information on Phase II of the Whole Child Model (WCM) Program, which currently is scheduled for implementation on January 1, 2019, in 15 counties. Find details on the event flyer (PDF) and the WCM website. Advance registration is required.

Children with Medical Complexity

Next Up: A Conversation on Ethical Considerations for a Fair and Effective Health Care System

What ethical considerations should guide the design and evaluation of systems of care for children with medical complexity? The next conversation in our series on Building Systems that Work for Children with Complex Health Care Needs will focus on the inevitable tradeoffs that any complex health care system must confront when attempting to achieve multiple worthy goals. Join these speakers for a lively discussion on the article Ethical Framework for Risk Stratification and Mitigation Programs for Children with Medical Complexity.

Wednesday, October 24
10 a.m. to 11 a.m. Pacific Time
Lucile Packard Foundation for Children's Health
Details: Register.

Care Coordination

Webinar Series: Improving Care for Children with Medical Complexity

The Coordinating All Resources Effectively (CARE) Award, a national project to transform care delivery and payment models for children with medical complexity, is sponsoring a four-part webinar series. See the archived recording of Stabilizing the Cost of Care, and learn more about the upcoming webinars. CNE credit available.

Family Engagement

A Chance for CSHCN Families to Weigh In on What Medical Students Should Learn

The Council on Medical Student Education in Pediatrics is revising its curriculum. The Council is asking for family opinions on the skills, attitudes, and knowledge that every doctor must have to safely and compassionately care for children. This is an opportunity to highlight the need to train medical students about the particular requirements of children with special health care needs. Complete a five-minute survey

National Policy

California Policy

Medi-Cal Children's Health Advisory Panel to Meet

Thursday, October 18
10 a.m. to 2 p.m. Pacific Time
The California Endowment
1414 K Street, Sacramento – First Floor Conference Room
(888) 947-8923; Passcode: 2475546
Details: Agenda and materials will be posted on the website.

Promising Programs

Revamping the Discharge Process to Reduce Medication Errors

Editor's note – Respondents to our newsletter survey asked that we feature innovative programs that address issues affecting children with special health care needs and their families. This is an example from Children’s Hospital at Montefiore.


  • Family Voices Immigration Toolkit – A collection of documents designed to inform, empower, and assist immigrant families of children and youth with special health care needs and the professionals who support them.
  • A three-minute video from The Arc tells the life-changing story of a family whose child was born with special needs, and emphasizes the importance of paid family and medical leave. View their story and read more about paid leave.
  • Cinemability: The Art of Inclusion – A look at the history of disability portrayals in entertainment, featuring well-known celebrities.
  • Complex Child October issue: Caregiving Challenges


Disability and Sexuality: Abuse Prevention and Empowerment

Wednesday, October 10
9 a.m. to 10 a.m. Pacific Time
SPAN Parent Advocacy Network
Details: Attendees will learn about how to recognize abuse, strategies to communicate about it, and sources of support for individuals with intellectual and developmental disabilities. Third in a series. Learn more and register.

Did You Know?

The results of state reporting on the 2017 Child Core Set of Health Care Quality Measures in Medicaid and CHIP have been released by the federal Centers for Medicare and Medicaid Services. Read more.

Internship Opportunity

Apply Now: Summer Internships in Washington, DC

Every summer, the American Association of People with Disabilities offers internships in the Washington, DC, area to college students, graduate students, law students, and recent graduates with all types of disabilities. Interns are matched with a mentor who will assist them with their career goals. A stipend, transportation to and from Washington, DC, and fully-accessible housing are provided. Deadline is November 5. Read about how to apply.

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