Network Newsletter sent on November 1, 2018
News, policy updates, resources, events, and advocacy opportunities
Remeber to vote on November 6.
Care Coordination
Report: State Strategies for Using Shared Plans of Care to Improve Care Coordination
Care coordination enhances health outcomes for children with chronic conditions and mitigates the burden on families. A shared plan of care is an essential component of care coordination. A new report from the National Academy for State Health Policy identifies approaches and strategies that states can use to promote the use of shared plans of care as part of care coordination. The report highlights initiatives from four states. Read the report.
Also See: Achieving a Shared Plan of Care with Children and Youth with Special Health Care Needs
Webinar: Community Care Coordination Systems – Leveraging Technology to Close the Loop
Tuesday, November 6
11 a.m. to 12:30 p.m. Pacific Time
Nemours Children’s Health System
Details: A discussion of community care coordination systems and the role of technology applications that are emerging to “close the loop” between clinical and community services. This event is recommended for anyone working in public health, advocacy, community-based systems, hospitals/health systems, insurers, and public and private funders. Read more and register.
CARE Award Webinar: Transforming the Delivery Syste
Wednesday, November 14
11:30 a.m. to 1 p.m. Pacific Time
Children’s Hospital Association
Deatils: This webinar, the third in a four-part series on improving care for children with medical complexity, will focus on how improving care coordination can lead to improvement in delivery system design. Speakers include representatives from Children’s Hospital of Philadelphia, Cincinnati Children’s Hospital Medical Center, and Cook Children’s Health Care System. Read more and register.
Children with Medical Complexity
How Changing Models of Health Care Payment Affect Children with Medical Complexity
In the final webinar in our series on "Building Systems that Work for Children with Complex Health Care Needs" panelists will consider how proposed changes in health care payment – from fee-for-service to value-based payment systems – can have a substantial impact on health services for children, especially those with complex needs. Speakers will discuss the article, Evolving Federal and State Health Care Policy: Toward a More Integrated and Comprehensive Care-Delivery System for Children with Medical Complexity.
Wednesday, November 7
10 a.m. to 11 a.m. Pacific Time
Lucile Packard Foundation for Children's Health
Deatils: Read more and register.
Self-Management for Children with Complex Conditions
Read the follow-up questions and answers from our recent Conversation on Supporting Self-Management in Children and Adolescents with Complex Chronic Conditions, part of our webinar series. See the recording and slides from the webinar.
Family Engagement
Webinar: My Patient Rights – Removing Barriers to Treatment and Care
Wednesday, November 14
12 p.m. to 1 p.m. Pacific Time
Family Voices of California
Details: Liz Helms, president and CEO of the California Chronic Care Coalition, will discuss My Patient Rights (MPR), a one-stop shop for patients to learn how to file complaints with their health plans and state regulators to get the care they need and deserve. Register.
In Brief
- Powerful Partnerships: A Handbook for Families and Providers Working Together to Improve Care (PDF, 2012) – from the National Initiative for Children’s Healthcare Quality. Includes a guide for families and a guide for health care professionals.
California Children's Services
Whole Child Model Overview
An overview of the Whole Child Model and what it means for CCS children and families was presented October 18 by the Department of Health Care Services. Information included which counties and children will be part of the transition to managed care plans, ongoing benefits, providers who will be available, how to file grievances, and more. See the slide presentation (PDF).
Also, four updates, including Frequently Asked Questions, were added in October to the Department of Health Care Services Whole Child Model page. The overview of the Whole Child Model is now available in English and Spanish. See the updates.
Funding Opportunity
Letters of Inquiry for Foundation Grants Due in December
The deadline for submitting a letter of inquiry for grant funding from the Lucile Packard Foundation for Children’s Health is December 5. The Foundation funds programs and projects that will contribute to improving systems of care for children with special health care needs and their families in California and the nation. We strongly recommend that applicants carefully review our program goals, priorities and restrictions before submitting a letter of inquiry. Please do not submit a full proposal unless invited. See the application process.
Deadline Extended for Care Coordination for CSHCN Challenge Grants
The federal Maternal and Child Health Bureau is sponsoring a competition to support the development and testing of low-cost, scalable technological innovations to meet the information needs of families and case managers involved with care coordination for children with special health care needs. The deadline for submitting an application now is November 9. Find out more.
National Policy
Proposed ‘Public Charge’ Rule Changes Could Affect Children Who Need Health Care
A 60-day comment period now is under way on the Trump Administration’s proposal to change the public charge rule (PDF). The California Health Care Foundation has published Changing Public Charge Immigration Rules: The Potential Impact on Children Who Need Care, which outlines how the proposed changes might affect children from immigrant families, including children with potentially life-threatening conditions and special needs. Read the report and submit comments by December 10.
Also See: Children's Hospitals Bear Largest Brunt of Trump Immigration Crackdown (May require free registration.) Article notes the health risks for all children if Medicaid/CHIP enrollment drops.
Electronic Visit Verification Stakeholder Open Door Forum
Wednesday, November 7
10 a.m. to 12 p.m. Pacific Time
Centers for Medicare and Medicaid Services (CMS)
(800) 837-1935; Conference ID: 33979177
Details: The federal government is seeking stakeholder feedback on implementation of the Electronic Visit Verification program, which would require electronic verification that personal care and home health service visits have occurred. Read more.
Don’t Forget: Open Enrollment Starts Now
Open enrollment for the health insurance marketplace begins November 1 and ends December 15. Find more information and dates and deadlines. Also see The ACA Protects People with Preexisting Conditions; Proposed Replacements Would Not.
Webinars
Getting a Better Handle on Parents’ Bereavement
Tuesday, November 13
12 p.m. to 1 p.m. Pacific Time
Coalition for Compassionate Care
Details: Care providers will learn about understanding anticipatory grief and the challenges of parenting a child who is dying. Fee. Register.
Mitigating Medication Trauma in Complex Needs Populations
Wednesday, November 14
11 a.m. to 12 p.m. Pacific Time
Center for Health Care Strategies
Details: Individuals with special needs often have complex drug regimens. Learn how to identify people at risk, support comprehensive medication management, and implement medication regimen simplification solutions. Learn more and register.
Resources
- Exceptional Parent Magazine October issue – Employment & Transition
In the News
- For the Disabled, a Doctor's Visit Can Be Literally an Obstacle Course – And the Laws Can't Help
Washington Post, 10/28/18 - TV Shows Featuring More Characters with Disabilities
Disability Scoop, 10/25/18
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