Engaging with families is vital to transforming the health care system and positively impacting the life course of vulnerable populations. Families have extensive experience in partnering with professionals to improve systems of care, are organized and connected across the country, and stand ready to assist at every level of next efforts for improvement. Learn how to meaningfully involve families at every level of health care systems and engage them as critical partners in designing policies that will improve care for all children.
Families of CSHCN are the experts on their children’s health care and on how systems and services could function more effectively to meet their needs. However, many family members lack the skills, confidence, and support to pursue advocacy and leadership roles in system change. That’s beginning to change in California.
May is Mental Health Awareness Month, a time to note that many children with special health care needs also require mental health care services. The California Legislature has proposed several bills that address children’s mental health. There are two current bills worth noting.
New research from Mathematica Policy Research weighs the question: “Can we draw lessons from Medicare to improve care coordination for children with special health care needs - especially those covered by Medicaid?” The answer is yes.
Increased attention to children with medical complexity has occurred because these children are growing in number, consume a disproportionate share of health-system costs, and require policy and programmatic interventions that differ in many ways from the broader group of children with special health care needs. But will this focus on complex care lead to meaningful changes in systems of care and outcomes for children with serious chronic diseases?