Network Newsletter sent on March 27, 2020
News, policy updates, resources, events, and advocacy opportunities
- COVID-19: Information for Families of Children and Youth with Special Health Care Needs – from the American Academy of Pediatrics. A recording and article with suggestions for what families can do to keep safe and healthy, compiled by a pediatrician and a representative from Family Voices. Includes advice on preparing the home, medical appointments, supplies, schooling, coping, and more.
- Coronavirus Information and Resources – from Family Voices. Advice about what families of children with special health care needs can do.
- Are You Ready? Preparing for Emergencies: Tips for Families (PDF) – from Family Voices. Advice on how to keep informed, build a family plan, and assemble necessary supplies.
- Resources Specific to COVID-19 Response – from the Catalyst Center. Includes a Medicaid toolkit, frequently asked questions about Medicaid and the Children’s Health Insurance Program, coverage and benefits information, and additional links.
- Supplemental Fact Sheet Addressing the Risk of COVID-19 in Preschool, Elementary and Secondary Schools While Serving Children with Disabilities (PDF) – from the US Department of Education. A clarification about distance learning to amend an earlier policy statement. Notes that ensuring compliance with the Individuals with Disabilities Education Act (IDEA) and other federal regulations should not prevent any school from offering educational programs through distance instruction.
Two federal COVID-19-related bills recently became law, and a third was signed today by the President. While all the effects are yet to be understood, here are recent analyses of the first two laws:
- Small Victories, but Stimulus Bill Overlooks Many Critical Needs of People with Disabilities – from The Arc. Notes lack of funding for in-home support services, no paid time off for family caregivers, and other critical issues.
- The Families First Coronavirus Response Act: Summary of Key Provisions – from the Kaiser Foundation. Includes information about paid sick and medical leave, health insurance, and a range of other family-related issues.
ICYMI: In-Home Virtual Care for Children with Complex Conditions During Social Distancing – Representatives from four complex care programs around the country have recorded discussions about how they are providing tele-health services for children with medical complexity during the COVID-19 outbreak. The programs represented are Mercy Hospital in St. Louis, University of Texas in Houston, Children's National in Washington, DC, and Baystate Hospital in Massachusetts.