Network Newsletter sent on April 30, 2020
News, policy updates, resources, events, and advocacy opportunities
Foundation Accepting Grant Inquiries
Letters of Inquiry (LOI) for the Foundation’s next grant cycle will be accepted until June 11. We fund programs and projects that contribute to improving systems of care for children with special health care needs and their families. We strongly recommend that potential applicants carefully review our program goals, priorities, and restrictions before submitting an LOI. Read about the application process.
Serving CSHCN in Medicaid Managed Care: Targeted Contract Language
States increasingly are enrolling children with special health care needs in Medicaid managed care plans. A new tool from the National Academy for State Health Policy (NASHP) provides examples of how five states have incorporated aspects of the National Standards for Systems of Care for CYSHCN into their Medicaid managed care contracts to better meet the needs of these children. The provisions align with domains from the Standards, including identification/assessment, access to care, medical home/care coordination, and quality. This work was supported by our Foundation. Read more.
Transition to Adult Care
A Transition Guide for Youth; Billing Tips for Providers
- Are You Ready to Take Charge of Your Health? Five Steps to Prepare for Health Care Transition (PDF); También disponible en Español. – from Got Transition
- 2020 Coding and Reimbursement Tip Sheet for Transition from Pediatric to Adult Health Care (PDF) – from Got Transition and the American Academy of Pediatrics
- Betsy DeVos Gets Mixed Reaction to Decision to Leave Intact Law on Educating Students with Disabilities During Pandemic – An article from The Washington Post.
- On April 28, the Centers for Disease Control and Prevention updated its page on COVID-19 and Children and Youth with Special Health Care Needs.
- Know Your Rights: Emergency Paid Sick Days and Paid Leave for Child Care and Coronavirus – A fact sheet produced by the National Partnership for Children and Families. También disponible en Español (PDF).
- Consejos y Recursos para Familiares y Cuidadores de Niños y Jóvenes con Necesidades Especiales de Atención Médica – Resources from the California Department of Public Health.
- Uninsured and Unemployed? Medicaid and CHIP Provide Lifelines to Families in Need – The Georgetown Center for Children and Families explains eligibility requirements and enrollment processes for affected families.
- Supplemental Security Income Recipients, Act Now – The Social Security Administration has issued a reminder that people who receive SSI, have dependents, and do not file tax returns must apply by May 5 to receive a $500 per child payment.
- The National Center for Complex Health and Social Needs has conducted a series of webinars on COVID-19, including one on the unique impacts of the pandemic on individuals with complex health and social needs. Find all four webinars.
Telehealth and COVID-19
- A Telehealth Surge Allows Patients and Providers to See the Value of Visits – A Children’s Hospitals Today article highlights how Stanford Children’s Health handled a sudden influx of telehealth visits, and notes the potential benefits telehealth might hold for future care.
- To assist states and stakeholders in advancing the use of telehealth, the Centers for Medicare and Medicaid Services (CMS) has released a Medicaid and CHIP Telehealth Toolkit (PDF) with a special emphasis on pediatrics.
- Fact Sheet on Telehealth and Medicaid During COVID-19 – The National Health Law Program explores ways that state Medicaid programs can expand telehealth, while protecting patient rights, including privacy and consent.
Home Health Care and COVID-19
Home- and community-based services are even more essential during the pandemic. Several articles highlight the physical and financial concerns and potential solutions.
- Disability Advocates Say Billions Needed for Community-Based Services
Disability Scoop, 4/27/2020
- Protecting Healthcare’s Family Caregivers Amidst the COVID-19 Pandemic
Health Affairs, 4/24/20
- Home-Care Workers Facing Numerous Challenges During Pandemic
Association of Health Care Journalists, 4/20/20
Virtual Series on Leadership in Family and Professional Partnerships Continues
The Leadership in Family and Professional Partnerships convening from Family Voices brings together family leaders, Title V professionals, and other stakeholders to discuss successful strategies and best practices on how to improve engagement of families, particularly those from medically underserved populations. Five remaining online Zoom sessions are scheduled through May 19, and recordings of past sessions are available. Read more and register.
- Partnering for Success: How Family Organizations and Title V Agencies Can Utilize the Data Resource Center for Child and Adolescent Health (PDF) – Hosted by Family Voices Leadership in Family and Professional Partnerships
California Children’s Services
Guidelines Issued for CCS Services During Pandemic
The Department of Health Care Services has issued guidance on the California Children's Services Program During COVID-19 (PDF). These guidelines provide temporary direction to County California Children’s Services (CCS) and Special Care Centers (SCC), and cover key issues including telehealth, durable medical equipment, prior authorization, and much more.
- The Department of Health Care Services on April 29 issued revised guidance about Medical Therapy Units During COVID-19 (PDF).
- On April 22, a Governor’s Executive Order authorized the Department of Health Care Services to hold the fair hearing process (PDF) for California Children’s Services grievances and appeals by phone or video conference.
- To keep track of all recent state guidelines, see the Department of Health Care Services COVID-19 page.
- Guidance regarding redetermination of eligibility of a parent to be a paid In-Home Supportive Services provider (PDF) during COVID-19.
- The Medi-Cal Children’s Health Advisory Panel met on April 24. See the agenda and slide presentation.
How States May Use Medicaid Waivers to Support Children, CSHCN During Pandemic
More than a dozen states have submitted 1115 waiver applications that have the potential to safeguard access to care and increase support for children during the COVID-19 pandemic, according to a new blog from the National Academy for State Health Policy (NASHP). The blog notes a selection of key strategies for serving children that other states may want to consider through their Medicaid programs. Topics include payments to foster caregivers, reimbursement of family caregivers, and telephonic and virtual care coordination services, all of which are significant for children with special health care needs. Read the blog.
Trudging through COVID-19: Coping with Provider Grief and Moral Distress
Wednesday, May 6
1 to 2 p.m. Pacific Time
Jacob's Heart Children's Cancer Support Services, Pennsylvania's Pediatric Palliative Care Coalition, Greater Illinois Pediatric Palliative Care Coalition, Stanford Medical School, and the CSU Shiley Institute for Palliative Care
Details: This webinar will provide an opportunity to address the vastness of the COVID-19 crisis, and the grief, loss, and stress that providers are experiencing. It also will serve as a network for social support during this unprecedented time. Register.
In-Home Supportive Services, Medi-Cal, Social Security COVID-19 Updates
- Exceptional Parent Magazine April Issue – Autism as Comedy
In the News
- Stanford Has Made a Reusable Mask from Scuba Gear – and It’s Shipping It to the Front Lines of the Pandemic
Washington Post, 4/29/20
- Students with Special Needs Donate Face Shields Made with 3D Printers
Disability Scoop, 4/28/20
- Kids Who Rely on Ventilators Can’t Get Enough Supplies, Putting Their Lives at Risk
California Health Report, 4/22/20
- Parents of Those with Disabilities Seek Exception to COVID-19 No-Visitor Rules