Network Newsletter sent on May 14, 2020
News, policy updates, resources, events, and advocacy opportunities
Foundation Emergency Grants Respond to COVID-19
Our Foundation has awarded five emergency grants totaling $230,000 to help mitigate the impact of COVID-19 on children with special health care needs and their families. The grants aim to address immediate basic needs for local families, and to encourage national system and policy adjustments to ensure that CSHCN receive the care they need during the pandemic and beyond. Read about the grants.
Reminder: Letters of Inquiry Accepted for Non-Emergency Grants
Letters of Inquiry (LOI) for the Foundation’s next grant cycle will be accepted until Thursday, June 11. Before applying, read about our program goals, priorities, restrictions, and application process.
Family Voices Awarded Grant to Boost Telehealth for CSHCN During COVID-19
On April 30, the federal government awarded $20 million to increase telehealth access and infrastructure for providers and families to help prevent and respond to COVID-19. As part of that grant Family Voices will receive $1 million to increase capability, capacity, and access to telehealth for families of children and youth with special health care needs. The American Academy of Pediatrics and the Association of Maternal and Child Health Programs also received grants. Read about all the grants and the Family Voices grant specifically.
- Which Kids Get Sickest from COVID-19? The ‘Medically Complex,’ Study Finds – from NBC News, based on a study published in JAMA Pediatrics, May 11, 2020
- Schools and Child Care Programs During COVID-19: Plan, Prepare, and Respond – from the Centers for Disease Control and Prevention
- Opportunities for Health Insurance Coverage During COVID-19 Pandemic – from Healthcare.gov
- The Latest on “Public Charge” and COVID-19 – from Protecting Immigrant Families
- Broadening Medicare’s Accelerated and Advance Payment Program to Save Health Care Providers That Serve Our Most Vulnerable Populations – from The Commonwealth Fund, May 13, 2020
- Disability Nondiscrimination in Health Care and Community Life During the COVID-19 Pandemic (PDF) – from Disability Rights Education and Defense Fund
Children's Hospitals Are Losing $1 Million a Day
Mark Wietecha, president and CEO of the Children's Hospital Association, discusses the fiscal impact of COVID-19 on children’s hospitals, which provide essential services for children with medical complexity. He suggests that the federal CARES Act does not offer an adequate response. Read his viewpoint.
Children with Medical Complexity
Invitation: Share Your Successes on the Playbook
The Better Care Playbook, which provides users with the best available knowledge about promising approaches to improving care for people with complex needs, is made possible by seven leading health care foundations, and led by the Center for Health Care Strategies. Currently the Playbook is accepting submissions about promising resources from stakeholders. Although focused primarily on adults, the Playbook also includes pediatric information. Read about how to submit your best practice ideas for distribution.
- Putting Care at the Center 2020 Conference Postponed to 2021
- Addressing Complex Care Needs Amid COVID-19 – Better Care Playbook, updated May 14, 2020
A Call to Include People with Disabilities in COVID-19 Relief Bills
The Arc and other advocacy organizations are urging stakeholders to be in touch with their federal legislators to ensure that individuals with special needs are included in the COVID-19 bill that is currently pending. Read more.
Department of Health Care Services Stakeholder Advisory Committee and Behavioral Health Stakeholder Advisory Committee to Meet Jointly
Support Person Now Permitted in California Health Facilities
A new directive from the Department of Public Health clarifies that California health facilities may permit a support person to accompany a patient for whom a support person has been determined to be essential to the care of the patient, including pediatric patients, patients with physical, intellectual, and/or developmental disabilities and patients with cognitive impairments.
- California Has a New Web ‘Portal’ to Help Essential Workers Find Child Care – from EdSource, April 30, 2020
- Department of Health Care Services Highlights Policy Responses to COVID-19
COVID-19 Family Forum
Friday, May 29
11 a.m. Pacific Time
AMCHP Family and Youth Leadership Committee
Details: A discussion on the impacts of COVID-19. Register.
In the News
- In-Home Nurses Caring for Youth with Special Needs During COVID-19 Pandemic
KSTP, updated 5/1/20
- Target Expands Adaptive Clothing and Products for People with Special Needs
Disability Scoop, 4/22/20