Foundation Emergency Grants; Telehealth Grant for Family Voices; COVID-19 Updates

Network Newsletter sent on May 14, 2020

News, policy updates, resources, events, and advocacy opportunities

Network News

Foundation Emergency Grants Respond to COVID-19

Our Foundation has awarded five emergency grants totaling $230,000 to help mitigate the impact of COVID-19 on children with special health care needs and their families. The grants aim to address immediate basic needs for local families, and to encourage national system and policy adjustments to ensure that CSHCN receive the care they need during the pandemic and beyond. Read about the grants.

Reminder: Letters of Inquiry Accepted for Non-Emergency Grants

Letters of Inquiry (LOI) for the Foundation’s next grant cycle will be accepted until Thursday, June 11. Before applying, read about our program goals, priorities, restrictions, and application process.

Family Engagement

Family Voices Awarded Grant to Boost Telehealth for CSHCN During COVID-19

On April 30, the federal government awarded $20 million to increase telehealth access and infrastructure for providers and families to help prevent and respond to COVID-19. As part of that grant Family Voices will receive $1 million to increase capability, capacity, and access to telehealth for families of children and youth with special health care needs. The American Academy of Pediatrics and the Association of Maternal and Child Health Programs also received grants. Read about all the grants and the Family Voices grant specifically.



Children's Hospitals Are Losing $1 Million a Day

Mark Wietecha, president and CEO of the Children's Hospital Association, discusses the fiscal impact of COVID-19 on children’s hospitals, which provide essential services for children with medical complexity. He suggests that the federal CARES Act does not offer an adequate response. Read his viewpoint.

Children with Medical Complexity

Invitation: Share Your Successes on the Playbook

The Better Care Playbook, which provides users with the best available knowledge about promising approaches to improving care for people with complex needs, is made possible by seven leading health care foundations, and led by the Center for Health Care Strategies. Currently the Playbook is accepting submissions about promising resources from stakeholders. Although focused primarily on adults, the Playbook also includes pediatric information. Read about how to submit your best practice ideas for distribution.

In Brief


A Call to Include People with Disabilities in COVID-19 Relief Bills

The Arc and other advocacy organizations are urging stakeholders to be in touch with their federal legislators to ensure that individuals with special needs are included in the COVID-19 bill that is currently pending. Read more.

California Policy

Department of Health Care Services Stakeholder Advisory Committee and Behavioral Health Stakeholder Advisory Committee to Meet Jointly

Wednesday, May 27
9 a.m. to 12:30 p.m. Pacific Time
By webinar. Register
(415) 655-0001; Passcode: 926758433
Details: The agenda and other materials are available on the website.

Support Person Now Permitted in California Health Facilities

A new directive from the Department of Public Health clarifies that California health facilities may permit a support person to accompany a patient for whom a support person has been determined to be essential to the care of the patient, including pediatric patients, patients with physical, intellectual, and/or developmental disabilities and patients with cognitive impairments.

In Brief


COVID-19 Family Forum

Friday, May 29
11 a.m. Pacific Time
AMCHP Family and Youth Leadership Committee
Details: A discussion on the impacts of COVID-19. Register.

Special Education

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